Tuesday, August 13, 2013

Where are the answers?

Yesterday we met with my liver surgeon to go over what the MRI showed and what the GI tumor board had to say about my case.

The MRI taken August 6 shows the 2 tumors but also shows some other nodules - probably microscopic at the time of the PET scan taken July 18. He is not sure they are cancer but given everything we know - more than likely they are cancer. The two bigger/more visible tumors have grown a few mm since the PET scan as well. But they are still considered very small and He does not feel that he would be able to see them well enough to do an ablation on them. He is still very much wanting to do a TheraSphere treatment. We again told him our hesitancy to do TheraSpheres due to the fact that the Hospital Leah's Dad had this done at is no longer doing this treatment.

We also asked about a treatment called Hepatic Artery Infusion.  This is a treatment where a pump is installed under the skin (via surgery).  This pump delivers Chemo (probably the same flavor as I was already getting in my pump) directly to the liver via the Hepatic Artery.  My surgeon was willing to consider this treatment but has only done this a 7 times himself and claims none of them have been very effective. We feel as though we should find someone with more experience doing this sort of therapy 

His options of preferred "treatment" were to wait and watch or TheraSpheres. Since the tumors are already showing signs of growth when the chemo was stopped, neither of these are favorable options for us.

As far the GI tumor board and My case, My surgeon has not presented that yet.  He was on vacation so that will happen this Thursday.  I need to contact my oncologist since sometime he attends this meeting and sometimes does not.

I also will need to follow up with them after Thursday to see what information I can gain from them.  I have an appointment with each Doctor next week.
 
While I meet with my oncologist and talk about maintenance Chemo and likely this Hepatic Artery Infusion.  We'll obviously ask about other alternatives for treatment.

Prayers are certainly needed for direction; for stopping the growth of the tumors; for peace of mind that we are doing the best we can do given all the info we have been given.

1 comment:

  1. Kent, Ed and I are praying daily and you are always close to our thoughts. We'll continue to pray for God's peace as you make decisions about how to proceed. Love to all of you.

    Darlene

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