Saturday, November 30, 2013

What are the next steps?

Thanksgiving is typically a time for people to sit back and think about all the things they are thankful for.  This year I am thankful for all the doctors and nurses currently taking care of me.  I am thankful for the life I can continue to live each day, I am also thankful for the many people that help and care for me in many ways.  You all know who you are and what you do. 

Thursday would have been a chemo day but since the center was closed I needed to choose the Day before or the day after.  Naturally I chose to get treatment the day after Thanksgiving.  This meant Yesterday was the first day I've had Chemo Treatment in 4 weeks.  I was thankful for the break (even if it was due to low counts) which enabled me to do much needed work done on my master bathroom.

2 weeks ago I met with my Oncologist to go over the MRI results and talk about quality of life.  He talked about what to do to reduce the Nausea I had the 2 previous treatments.  His suggestion was to reduce the amount of the Irinotecan.  So this treatment the amount was reduced from 360 to 270.  I felt better immediately after and felt better on the way home.  I even felt hungry when I got home.  I was optimistic the nausea would be much less and managed with food.   However at 9:45 p.m. the feeling of nausea was back and back every hour for the next 4 hours. I don't know what else they can do with the mix to change this feeling but I'm game to try things.   The other thing my doc prescribed was a steroid for days 2-4 of chemo.  My problem is usually the worst is over day 1.

My next treatment day will be two weeks from this past Thursday which will be Dec 12.  I will see then what they are able to do with the nausea.

I got a call from U of M last week and wasn't able to answer it.  They left a message wanting to talk about next steps.  I need to call them back Monday or they will call me again next week.  It will be interesting to see what they have to say about what they feel the next steps should be.

So for now we wait.

--Kent

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