Getting on the merry go round....

Merry go rounds are supposed to be fun.  You run in the circle pick your seat and wait for the ride to start.  About 3 minutes later you come to a slow stop, you can get off and return to your family.  My life feels like a merry go round a bit but not in the sense I described above.  I'll get to the information, please hang on with me....

This past Tuesday, November 26 I was scheduled for and had my PET scan.  Normally the radiology team is so busy it's usually takes 3 - 5 days before you even think about seeing the report.  I'm not sure I would call it luck but I got the report on Wednesday halfway through the day.  At this point I read through it and still have not had the viewpoint from an or my Oncologist.

What I read (and this is paraphrasing) is there are several spots found on the liver and also the tumor that remains next to the bile duct is also still active.  If you remember back to this past summer I had radiation and oral Chemo targeting this very tumor that is still active.  So my question is how can it still be active after 28 treatmens of radiation?  I do not have any appointment scheduled with my Radiation Oncologist and even if I did I'm not sure she can appropriately give me the answer I'm looking for.

So what's next you ask.  Well I'm not able to tell you.  You see I found this all from looking at the report and knowing enough to intelligently figure things out.  I meet with my Oncologist on December 12.  During this appointment we should be discussing the PET scan from her point of view and likey this will be the discussion of what treatment should be and when it should be.  Allow me some educated speculation.  The cancer is in more than 1 organ / location, therefore the treatment likely cannot be surgery or radiation so the only realistic option left is systemic or ( IV) Chemo.  I should know more definitely after the Dec 12 apt.

During this Holiday weekend I ended up in the hospital for a GI issue.  I came home Yesterday and today I somewhat resumed my normal life.

So here we are on another trip around this merry go round and I'll be honest I'm not sure I'm ready for another trip around.

We appreciate your prayers for strength for the journey and complete healing.

We will update the information here when we have the Oncology apt.

~ Kent