Thanksgiving is typically a time for people to sit back and think about all the things they are thankful for. This year I am thankful for all the doctors and nurses currently taking care of me. I am thankful for the life I can continue to live each day, I am also thankful for the many people that help and care for me in many ways. You all know who you are and what you do.
Thursday would have been a chemo day but since the center was closed I needed to choose the Day before or the day after. Naturally I chose to get treatment the day after Thanksgiving. This meant Yesterday was the first day I've had Chemo Treatment in 4 weeks. I was thankful for the break (even if it was due to low counts) which enabled me to do much needed work done on my master bathroom.
2 weeks ago I met with my Oncologist to go over the MRI results and talk about quality of life. He talked about what to do to reduce the Nausea I had the 2 previous treatments. His suggestion was to reduce the amount of the Irinotecan. So this treatment the amount was reduced from 360 to 270. I felt better immediately after and felt better on the way home. I even felt hungry when I got home. I was optimistic the nausea would be much less and managed with food. However at 9:45 p.m. the feeling of nausea was back and back every hour for the next 4 hours. I don't know what else they can do with the mix to change this feeling but I'm game to try things. The other thing my doc prescribed was a steroid for days 2-4 of chemo. My problem is usually the worst is over day 1.
My next treatment day will be two weeks from this past Thursday which will be Dec 12. I will see then what they are able to do with the nausea.
I got a call from U of M last week and wasn't able to answer it. They left a message wanting to talk about next steps. I need to call them back Monday or they will call me again next week. It will be interesting to see what they have to say about what they feel the next steps should be.
So for now we wait.
--Kent
Saturday, November 30, 2013
Thursday, November 14, 2013
Support
Today is Thursday... Thursday in our house has many different meanings. It means one day til we have some days of out of the normal routine, every other week it means chemo weeks and on the opposite Thursdays we attend Gilda's Support Group. A cancer Support for all three of us to attend that my Dad introduced us to.
Today was going to be a Chemo day for Kent along with a Dr. appointment to review what an MRI showed of Kent's Pelvis and Abdomen. We saw the Dr. and he shared with us Good News! When Kent had the ablation back in Oct along with the chemo he is receiving lately the results show there is NO active cancer in him at this point. This DOES NOT mean that has become cancer free, it just means that the cancer in Kent's body is showing no growth and there is no new growth. What this does this mean now, you may wonder... well he will continue chemo for 4 more months. We do this to continue on the hopes that we keep him inactive. You see there are still cysts that at this time could become active and to assure that it doesn't happen we need to keep up on this regimen. Today he could not receive chemo due to his Neutrophil level being very low. See if he would of had active cancer they would of gave him the chemo with the level he had. He doesn't have an urgency to have the chemo so why give it to him and make him ill. We will wait a week when he is more "healthy and continue what the Dr. has planned which is in about three months we will do another scan to keep up with how Kent's body is responding to chemo. Then if we are still in the all clear we may begin a maintenance routine which will only include a pump hook up and home routine, no sitting in the "Chemo Chair", for four hours then pump. We will take each step as it comes.
Tonight, Lydia was at a party of a classmate and then went to a friends house. Tonight Kent and I went to Gilda's. Tonight we both received a round of applause as we announced to our support groups (individual) that Kent's Cancer was inactive. As Kent and I were sitting telling our story of celebration we had those in our group that had good news also but those to who have had hardship and grief in there cancer journey. Kent and I really have been supported though this organization but at the same time feel that we have been put in our groups to encourage those around us. Tonight I pray for those in our Gilda's family as some weep over the end of their journey and some rejoice as God has given them another year in life.
So you may ask how Kent Celebrated his day, well.... He tore apart our "master bath." Yup. He said, he was going to take the back splash off which led to a series of things like... taking the mirror off, sanding the walls, taking the counter off and mudding any holes in the room oh which led to A LOT more. Only Kent would do that. But it is back to work for this boy tomorrow. I think I may call his bosses to tell them I know he isn't afraid to get to work:)
There are so many places of Support. Support groups for many things that are happening in and around our Community. It may not be cancer it may be ?? you fill it in, but don't be afraid of the care that is out there for you. people may need to hear your story, people may touch your heart somehow. Love and care for those around you, you may be blessed in so many ways. I have.
-- Leah
Today was going to be a Chemo day for Kent along with a Dr. appointment to review what an MRI showed of Kent's Pelvis and Abdomen. We saw the Dr. and he shared with us Good News! When Kent had the ablation back in Oct along with the chemo he is receiving lately the results show there is NO active cancer in him at this point. This DOES NOT mean that has become cancer free, it just means that the cancer in Kent's body is showing no growth and there is no new growth. What this does this mean now, you may wonder... well he will continue chemo for 4 more months. We do this to continue on the hopes that we keep him inactive. You see there are still cysts that at this time could become active and to assure that it doesn't happen we need to keep up on this regimen. Today he could not receive chemo due to his Neutrophil level being very low. See if he would of had active cancer they would of gave him the chemo with the level he had. He doesn't have an urgency to have the chemo so why give it to him and make him ill. We will wait a week when he is more "healthy and continue what the Dr. has planned which is in about three months we will do another scan to keep up with how Kent's body is responding to chemo. Then if we are still in the all clear we may begin a maintenance routine which will only include a pump hook up and home routine, no sitting in the "Chemo Chair", for four hours then pump. We will take each step as it comes.
Tonight, Lydia was at a party of a classmate and then went to a friends house. Tonight Kent and I went to Gilda's. Tonight we both received a round of applause as we announced to our support groups (individual) that Kent's Cancer was inactive. As Kent and I were sitting telling our story of celebration we had those in our group that had good news also but those to who have had hardship and grief in there cancer journey. Kent and I really have been supported though this organization but at the same time feel that we have been put in our groups to encourage those around us. Tonight I pray for those in our Gilda's family as some weep over the end of their journey and some rejoice as God has given them another year in life.
So you may ask how Kent Celebrated his day, well.... He tore apart our "master bath." Yup. He said, he was going to take the back splash off which led to a series of things like... taking the mirror off, sanding the walls, taking the counter off and mudding any holes in the room oh which led to A LOT more. Only Kent would do that. But it is back to work for this boy tomorrow. I think I may call his bosses to tell them I know he isn't afraid to get to work:)
There are so many places of Support. Support groups for many things that are happening in and around our Community. It may not be cancer it may be ?? you fill it in, but don't be afraid of the care that is out there for you. people may need to hear your story, people may touch your heart somehow. Love and care for those around you, you may be blessed in so many ways. I have.
-- Leah
Sunday, November 3, 2013
Gift Giving!
Kent, Lydia and myself have always kept quite busy on weekends. Every other week on and off for about 2 years now we have been slowed down due to Chemo. You can often find us on non chemo weeks going from earlier morning to late evening doing this that and everything in between. We have never been ones to just sit. Lydia loves when we have many things to do together as a family.
This week WAS a chemo week and one of those do nothing weekends. Lydia was simply bored.
Kent had Chemo on Thursday (Halloween) and was very sick that evening. Often during chemo you can find Kent laying completely flat. Despite him feeling ill, I still took Lydia for our annual night at my moms with a soup dinner and Trick or Treating. The night just wasn't the same as my Dad loved this holiday and wasn't there and Kent was home not feeling well all night. I worried how Kent was holding up by himself. Lydia stayed with my mom that evening as she doesn't do well with Kent being ill. I returned later that evening to find Kent NOT doing well at all. Well, what do I do? It is a guessing game. I was out of ideas. I was very nervous myself. I grabbed the phone and called after hours. They returned my call within a half hour. I explained that Kent simply was not holding food down and just was miserable. They explained that I needed to give him two of his Meds. at the same time and then continuing him laying flat. You need to know that they don't like you to give these meds very quickly because too soon after the chemo they administer because it could mess up the regimen. After a couple of hours he was zonked out,( a symptom of both Meds.) the whole night! He did Not wake or become sick at any point that night, for that I was very happy.
This weekend, Saturday into Sunday Kent was doing better. He is holding food down and moving ever so gingerly wherever he went. His appetite was very little but he was gaining that back ever so slowly. He eats little and often. He found himself eating every hour or two, so do I, which is good for him and not for me!
Tonight, I sat next to him and he was definitely doing better but you can tell he isn't a hundred percent yet. He often complained about his stomach being off and needing some relief. I feel helpless. I feel like I am not doing what needs to be done.
Today, I was wondering if he would make it to church. We often have the Saturday evening discussion on Chemo weeks if he feels like going in the morning and he will tell me that he will face that in the morning. I sometimes am amazed he wants to go, but Kent loves his church family and needs his few hugs that he always receives every Sunday morning without fail! ( Those of you know who you are ) :) It is the best way we start our week.
This week will bring a Doc appointment. Kent will have an MRI of the abdomen and the pelvis to see the results of the RFA procedure back in Oct. We will not find out anything information wise until the 14th of November when Kent has an oncologist appt. and Scheduled chemo on that day. We are praying for the best results.
Kent and I were calculating a few things out today and Kent told me that He will be done with Chemo around Christmas if all goes as we had it planned out. We will be talking to our Dr. about how to avoid the Holidays as Kent is suppose to receive Chemo on Thanksgiving and a day after Christmas.
As I end this I have been reminded of how much life is a gift. A gift that has to be shared. Today in Kid zone the kids and I talked about talents that we have are to be given away not be just received. Today, I was given a gift by a few people. In slowing down every other weekend because of Kent I have been shown to that I need to stop and care for those around me. Not being so focused on me. Caring for others, has been taught to me by two loving parents. One who still shows me that and one who I will always remember how he showed me. Another person today showed me that I was meant to teach the young people in church and that they saw my dad in me. I promised my dad before he passed that I will teach his grand kids and the kids of Sunrise more about living for Jesus!
So Living for Jesus is what Kent, Lydia and myself will do. We each have gifts to be given away. So do you. What do you have going on next weekend? It's a non Chemo week here at this household but maybe I (we) just need to slow down and give someone a gift. Will you give one along with me?
Leah
This week WAS a chemo week and one of those do nothing weekends. Lydia was simply bored.
Kent had Chemo on Thursday (Halloween) and was very sick that evening. Often during chemo you can find Kent laying completely flat. Despite him feeling ill, I still took Lydia for our annual night at my moms with a soup dinner and Trick or Treating. The night just wasn't the same as my Dad loved this holiday and wasn't there and Kent was home not feeling well all night. I worried how Kent was holding up by himself. Lydia stayed with my mom that evening as she doesn't do well with Kent being ill. I returned later that evening to find Kent NOT doing well at all. Well, what do I do? It is a guessing game. I was out of ideas. I was very nervous myself. I grabbed the phone and called after hours. They returned my call within a half hour. I explained that Kent simply was not holding food down and just was miserable. They explained that I needed to give him two of his Meds. at the same time and then continuing him laying flat. You need to know that they don't like you to give these meds very quickly because too soon after the chemo they administer because it could mess up the regimen. After a couple of hours he was zonked out,( a symptom of both Meds.) the whole night! He did Not wake or become sick at any point that night, for that I was very happy.
This weekend, Saturday into Sunday Kent was doing better. He is holding food down and moving ever so gingerly wherever he went. His appetite was very little but he was gaining that back ever so slowly. He eats little and often. He found himself eating every hour or two, so do I, which is good for him and not for me!
Tonight, I sat next to him and he was definitely doing better but you can tell he isn't a hundred percent yet. He often complained about his stomach being off and needing some relief. I feel helpless. I feel like I am not doing what needs to be done.
Today, I was wondering if he would make it to church. We often have the Saturday evening discussion on Chemo weeks if he feels like going in the morning and he will tell me that he will face that in the morning. I sometimes am amazed he wants to go, but Kent loves his church family and needs his few hugs that he always receives every Sunday morning without fail! ( Those of you know who you are ) :) It is the best way we start our week.
This week will bring a Doc appointment. Kent will have an MRI of the abdomen and the pelvis to see the results of the RFA procedure back in Oct. We will not find out anything information wise until the 14th of November when Kent has an oncologist appt. and Scheduled chemo on that day. We are praying for the best results.
Kent and I were calculating a few things out today and Kent told me that He will be done with Chemo around Christmas if all goes as we had it planned out. We will be talking to our Dr. about how to avoid the Holidays as Kent is suppose to receive Chemo on Thanksgiving and a day after Christmas.
As I end this I have been reminded of how much life is a gift. A gift that has to be shared. Today in Kid zone the kids and I talked about talents that we have are to be given away not be just received. Today, I was given a gift by a few people. In slowing down every other weekend because of Kent I have been shown to that I need to stop and care for those around me. Not being so focused on me. Caring for others, has been taught to me by two loving parents. One who still shows me that and one who I will always remember how he showed me. Another person today showed me that I was meant to teach the young people in church and that they saw my dad in me. I promised my dad before he passed that I will teach his grand kids and the kids of Sunrise more about living for Jesus!
So Living for Jesus is what Kent, Lydia and myself will do. We each have gifts to be given away. So do you. What do you have going on next weekend? It's a non Chemo week here at this household but maybe I (we) just need to slow down and give someone a gift. Will you give one along with me?
Leah
Saturday, October 19, 2013
Chemo Sucks!
Well, I bought a card at the beginning of Kent's cancer journey, it went like this -- Chemo Sucks! is what it said on the outside and the inside read -- if the chemo sucks the cancer out of you then yeah Chemo. Kent has a hard time believing this, this week. The Chemo knocked him out. He was whipped and had many of the symptoms that come alongside chemo. I hate what it does to him but am grateful for it. Chemo does its number not only on Kent but the rest of us too. Lydia and myself find ourselves whipped from doing things normally Kent could help us in and do himself. I will tell you I take for granted a full nights rest as Kent and I were up most of the night on Thursday.
Today, Saturday as the day wore on I could tell Kent felt his energy come back ever so slowly. He still laid around a bit but was able to move around and sit up and eat every once and awhile. We had a few visitors and he was able to visit with them briefly.
Kent has been very busy this last week. We as a Sunrise family are turning Ten! Kent was given the task to put a video together and a short slide show presentation. He was able for the most part put this together before chemo, but after, I again sat by him as he told me what to do. I am grateful the times that we can help each other out. I can't wait for the celebration! Ten years of Sunrise Ministries and a church that I am very proud to be a part of. As we continue on another Ten years, I pray we remember who walked alongside the past that as a Church we embrace who will guide us in the next Ten.
As the night winds down Kent is watching the Tigers, Lydia is playing and I am sitting writing the blog. I am thankful for the return of the beginnings of some normalcy again. I don't know about you but as the fall is often a time of Thankfulness I am very thankful for family.
Next week we are thankful that Kent's whole family will be here all together. There will be plenty of Celebrating going on the 25th and 26th of October. Kent's Mom and Dad will be celebrating 50 years of Marriage on the 25th, but we will be celebrating on the 26th. Kent's brother and family will be making the trek from Idaho and Sister and family from Indiana. We haven't been together as a family in quite some time so we are praying that all plans that are made will be able to be carried through. We also pray that with health issues that Kent's dad has that he will be able to enjoy the day and that we can celebrate a huge day in his and mom's life. My nephew Jered and myself share birthdays on the 25th as well.
This past week Kent and I have talked about how we would not make it without people that help us. From lawn mowing, driving us around, house repairs, to bring meals we would not make it. We are so thankful that God has placed you in our life. We are so thankful for his never ending care to us.
Soon Kent will write again but for now I am due to his strength and stamina. May you be blessed as many of you have blessed us-- Leah for all the De Young clan.
Today, Saturday as the day wore on I could tell Kent felt his energy come back ever so slowly. He still laid around a bit but was able to move around and sit up and eat every once and awhile. We had a few visitors and he was able to visit with them briefly.
Kent has been very busy this last week. We as a Sunrise family are turning Ten! Kent was given the task to put a video together and a short slide show presentation. He was able for the most part put this together before chemo, but after, I again sat by him as he told me what to do. I am grateful the times that we can help each other out. I can't wait for the celebration! Ten years of Sunrise Ministries and a church that I am very proud to be a part of. As we continue on another Ten years, I pray we remember who walked alongside the past that as a Church we embrace who will guide us in the next Ten.
As the night winds down Kent is watching the Tigers, Lydia is playing and I am sitting writing the blog. I am thankful for the return of the beginnings of some normalcy again. I don't know about you but as the fall is often a time of Thankfulness I am very thankful for family.
Next week we are thankful that Kent's whole family will be here all together. There will be plenty of Celebrating going on the 25th and 26th of October. Kent's Mom and Dad will be celebrating 50 years of Marriage on the 25th, but we will be celebrating on the 26th. Kent's brother and family will be making the trek from Idaho and Sister and family from Indiana. We haven't been together as a family in quite some time so we are praying that all plans that are made will be able to be carried through. We also pray that with health issues that Kent's dad has that he will be able to enjoy the day and that we can celebrate a huge day in his and mom's life. My nephew Jered and myself share birthdays on the 25th as well.
This past week Kent and I have talked about how we would not make it without people that help us. From lawn mowing, driving us around, house repairs, to bring meals we would not make it. We are so thankful that God has placed you in our life. We are so thankful for his never ending care to us.
Soon Kent will write again but for now I am due to his strength and stamina. May you be blessed as many of you have blessed us-- Leah for all the De Young clan.
Wednesday, October 9, 2013
The Sign
Today is beautiful. I love fall. The weather is perfect. The Sun is shining and the air is just warm enough but still has a cool feel to it. I love all the decorations that everyone puts on their porches, around their houses and Kent often hears me say to him, " I love looking at the sky in fall." These are all signs of fall.
Today, we went to the oncologist and heard from him ... " How was your appt. in Ann Arbor?" Kent told the Dr. that he was doing great. He was not in near as much pain as the Drs. in Ann Arbor had thought. He was doing things that he shouldn't have long before he was supposed to. The Dr. then asked, were there any side effects that were concerning to him? Kent was quick to respond and say, none that are major but some that were quickly answered. He then had an exam and we exchanged a thank you for his care. Most of you would be surprised to know that this Dr. was my Dr. for hematology before Kent called him his oncologist. I asked him a few questions about my health before we left him. I, again said, " thank you for all you do for us. How thankful to God I am for how little cancer Kent has left. The Dr. then said, " You have that right,and it is my pleasure." I am so thankful for this Dr. He is one of the nicest oncologists around. One last thing before I get the scheduling of what is next .... The Dr. told Kent "You look like you had gained weight." Kent and I said with a smile, "Yes!" Kent has gained quite a bit. The Dr. responded and said, " That is a sign that there is very little cancer!" I never thought that I would say this, " Thank You Jesus for Kent's weight." His weight has always been in the high 150's today his weight was 178.9 lbs. I have such a thankful heart for little cancer.
Next, Kent will be on one of the last phases of what happens before putting him on a maintenance plan. Kent will undergo Systemic chemo for about 6 cycles. This is the same chemo that he has always received, but they will add aflibercept , a drug that he will get the second cycle, due to not wanting to damage the liver to soon after his RFA procedure. His first treatment will be on the 17th of Oct. We are unsure of time or many details right now. We know that he will also be having an MRI in early November to check liver and lower abdomen for any traces of cancer. The Dr. isn't concerned but this will help him in the future with how to help Kent. These are all good signs. Signs that if we can keep the cancer stable Kent will be able to hold a life of fewer Dr. appointments and as we approach Holiday's we will be able to enjoy them and be able to work chemo around them.
I can't help but be Thankful. This time of year we are reminded to always, Give thanks! I am. I will give thanks! Cancer has been a big part of our life the past eight years. I am so glad God gives us signs that he is standing right by us and signs that he will never leave us.
Blessings, Leah
Today, we went to the oncologist and heard from him ... " How was your appt. in Ann Arbor?" Kent told the Dr. that he was doing great. He was not in near as much pain as the Drs. in Ann Arbor had thought. He was doing things that he shouldn't have long before he was supposed to. The Dr. then asked, were there any side effects that were concerning to him? Kent was quick to respond and say, none that are major but some that were quickly answered. He then had an exam and we exchanged a thank you for his care. Most of you would be surprised to know that this Dr. was my Dr. for hematology before Kent called him his oncologist. I asked him a few questions about my health before we left him. I, again said, " thank you for all you do for us. How thankful to God I am for how little cancer Kent has left. The Dr. then said, " You have that right,and it is my pleasure." I am so thankful for this Dr. He is one of the nicest oncologists around. One last thing before I get the scheduling of what is next .... The Dr. told Kent "You look like you had gained weight." Kent and I said with a smile, "Yes!" Kent has gained quite a bit. The Dr. responded and said, " That is a sign that there is very little cancer!" I never thought that I would say this, " Thank You Jesus for Kent's weight." His weight has always been in the high 150's today his weight was 178.9 lbs. I have such a thankful heart for little cancer.
Next, Kent will be on one of the last phases of what happens before putting him on a maintenance plan. Kent will undergo Systemic chemo for about 6 cycles. This is the same chemo that he has always received, but they will add aflibercept , a drug that he will get the second cycle, due to not wanting to damage the liver to soon after his RFA procedure. His first treatment will be on the 17th of Oct. We are unsure of time or many details right now. We know that he will also be having an MRI in early November to check liver and lower abdomen for any traces of cancer. The Dr. isn't concerned but this will help him in the future with how to help Kent. These are all good signs. Signs that if we can keep the cancer stable Kent will be able to hold a life of fewer Dr. appointments and as we approach Holiday's we will be able to enjoy them and be able to work chemo around them.
I can't help but be Thankful. This time of year we are reminded to always, Give thanks! I am. I will give thanks! Cancer has been a big part of our life the past eight years. I am so glad God gives us signs that he is standing right by us and signs that he will never leave us.
Blessings, Leah
Thursday, October 3, 2013
No Pain, No Gain!
Our day begun at 7:30am on Oct. 2. Kent's Co-worker came to pick us up and drive us to Ann Arbor. Our expected time of Arrival was to be at the Hospital at 10:00 am. We arrived on time and the hurry up and wait became our theme for the day. Kent was not called into Pre op until 1:00 pm. So we sat in a sunny waiting room with many walks of life happening around us. Kent was in a good mood. He often jokes to pass his fears and calm his nerves and this time was no different.
He then was taken back at 1:25pm. I walked the long hall with him into Surgery and before he went into the operating room, I went right as he went left. I said a little prayer as he separated from me. Many of you know that Kent and I are a team. We often do things to help each other to later help others. As I walked away, I thought about my mom and dad and that they also were a team and as they went through many hardships through cancer I was thinking... we are too. What they had together is such an inspiration and seeing our spouses going through a terminal illness just makes me all the more not want to be separated from Kent.
Surgery lasted roughly 1 and a half hours. The Dr. came out to tell me that the surgery went very well. The tumor they attacked was superficial and near the most tender part of the liver. He followed the short conversation by" it will be a painful recovery." I, then came back out to the waiting room and told Kent's co- worker what was going on. I said that the Dr. would not let me go back for 2 additional hours as he needed to be flat and he was out of it. It was roughly 5:15 when I was paged to go back and see him. He was alert and I held his hand and told him his color looked great and how proud I was of him. We, Kent's co worker, myself , Kent and the nurses then moved into yet a third recovery area where we waited an additional 2 and a half hours. Kent was able to sit up and eat and drink. Later, he told me he didn't know if that was the best choice but .... he did it. They then let us go after dinner and a few episodes of "Castle." It was 7:45 pm and we were just leaving the Hospital. Kent was wheeled in a maize and Blue wheel chair and loaded into the back of the FRC van. The seats reclined that was a little more comfortable for him. The FRC van acquired wings and we made it home in quick fashion. Kent then scuffed himself into our house and I tucked him into his own bed which gave him a greats night rest and a much needed sleeping in.
Today, I was fully intending to stay home from work with a sub lined up for me and I turned to Kent and said, "How are you?" he said, "pretty good, go to work. " So I made a few calls canceled the Sub and headed in for a very busy and productive day in preschool... a day in preschool is never dull:) I received a call at preschool today from my mom and she said my uncle had broken collar bone and she was unable to help me with my afternoon kid sitting with my nephew due to her needing to help my Uncle out. I quickly said, no worries Kent is doing great, I would be happy to help. Lukas soon accompanied Kent (passenger) and I to Kent's work to grab a few conversations and a much needed new phone and later lunch. We loved having a little helper this afternoon. Lukas brings much excitement and we always love our little man.
Kent has done well all day. He hasn't had a pain med all day. We both agreed that we could possibly make it to our Gilda's support group and so we pushed forward and did that. I was shocked on how well he has done after this procedure. This day has proved to me how hard he is fighting to keep fighting this cancer away and still be a Great father, husband.
I can not end this post without saying, how dependent we are to asking in prayer from our heavenly father to stand next to us and reveal his plan in our lives. I want to leave you with a few very special thoughts that happened in the last few days. Lydia's classroom prayed for Kent during his surgery in their outdoor classroom and that touched my heart so much. I love that Lydia is in a Christian school and is able to do that. The other is that my preschool director has been praying for those who have cancer and the preschoolers have made cards for those who are in treatment. Wow! what a blessing they all have been. Thank You! Lastly, I would like to take a moment and thank all those who have taken care of Lydia in the last few days.
This has been a journey.... where the journey leads us next is this.... Dr. Appt. on the 9th. with Kent's oncologist. Then followed with chemo in 2 weeks. He then will be monitored with an MRI in 4 to 6 weeks. What is after that we will learn to lean on the everlasting arms of Jesus.
Leah
He then was taken back at 1:25pm. I walked the long hall with him into Surgery and before he went into the operating room, I went right as he went left. I said a little prayer as he separated from me. Many of you know that Kent and I are a team. We often do things to help each other to later help others. As I walked away, I thought about my mom and dad and that they also were a team and as they went through many hardships through cancer I was thinking... we are too. What they had together is such an inspiration and seeing our spouses going through a terminal illness just makes me all the more not want to be separated from Kent.
Surgery lasted roughly 1 and a half hours. The Dr. came out to tell me that the surgery went very well. The tumor they attacked was superficial and near the most tender part of the liver. He followed the short conversation by" it will be a painful recovery." I, then came back out to the waiting room and told Kent's co- worker what was going on. I said that the Dr. would not let me go back for 2 additional hours as he needed to be flat and he was out of it. It was roughly 5:15 when I was paged to go back and see him. He was alert and I held his hand and told him his color looked great and how proud I was of him. We, Kent's co worker, myself , Kent and the nurses then moved into yet a third recovery area where we waited an additional 2 and a half hours. Kent was able to sit up and eat and drink. Later, he told me he didn't know if that was the best choice but .... he did it. They then let us go after dinner and a few episodes of "Castle." It was 7:45 pm and we were just leaving the Hospital. Kent was wheeled in a maize and Blue wheel chair and loaded into the back of the FRC van. The seats reclined that was a little more comfortable for him. The FRC van acquired wings and we made it home in quick fashion. Kent then scuffed himself into our house and I tucked him into his own bed which gave him a greats night rest and a much needed sleeping in.
Today, I was fully intending to stay home from work with a sub lined up for me and I turned to Kent and said, "How are you?" he said, "pretty good, go to work. " So I made a few calls canceled the Sub and headed in for a very busy and productive day in preschool... a day in preschool is never dull:) I received a call at preschool today from my mom and she said my uncle had broken collar bone and she was unable to help me with my afternoon kid sitting with my nephew due to her needing to help my Uncle out. I quickly said, no worries Kent is doing great, I would be happy to help. Lukas soon accompanied Kent (passenger) and I to Kent's work to grab a few conversations and a much needed new phone and later lunch. We loved having a little helper this afternoon. Lukas brings much excitement and we always love our little man.
Kent has done well all day. He hasn't had a pain med all day. We both agreed that we could possibly make it to our Gilda's support group and so we pushed forward and did that. I was shocked on how well he has done after this procedure. This day has proved to me how hard he is fighting to keep fighting this cancer away and still be a Great father, husband.
I can not end this post without saying, how dependent we are to asking in prayer from our heavenly father to stand next to us and reveal his plan in our lives. I want to leave you with a few very special thoughts that happened in the last few days. Lydia's classroom prayed for Kent during his surgery in their outdoor classroom and that touched my heart so much. I love that Lydia is in a Christian school and is able to do that. The other is that my preschool director has been praying for those who have cancer and the preschoolers have made cards for those who are in treatment. Wow! what a blessing they all have been. Thank You! Lastly, I would like to take a moment and thank all those who have taken care of Lydia in the last few days.
This has been a journey.... where the journey leads us next is this.... Dr. Appt. on the 9th. with Kent's oncologist. Then followed with chemo in 2 weeks. He then will be monitored with an MRI in 4 to 6 weeks. What is after that we will learn to lean on the everlasting arms of Jesus.
Leah
Tuesday, October 1, 2013
Twelve bells
In just under 12 hours at the strike of noon I am scheduled for my Radio frequency ablation procedure at University of MI. One of my coworkers has graciously offered to take us down there. Assuming we don't have to stay overnight he'll drive us home to. If we do stay the night for observation Someone else will pick us up in the morning.
I had my last meal about 2 hours ago and will not get anything but water until after my procedure. Since I am used to several meals and snacks a day I'm sure I will be very hungry by time I get food.
I am more than ready to get this over with. More news when we get back home.
--Kent
I had my last meal about 2 hours ago and will not get anything but water until after my procedure. Since I am used to several meals and snacks a day I'm sure I will be very hungry by time I get food.
I am more than ready to get this over with. More news when we get back home.
--Kent
Thursday, September 19, 2013
Burn out!!
As of the last post today was suppose to be a day filled with Chemo therapy. Last Thursday after I arrived home due to low counts I got a call from the Doctor at U of Mi. He had presented my case before the GI tumor board. Radiologists, Radiation Techs, Surgeons, and Oncologists were all present looking at my most recent MRI and PET-CT scans. The consensus around the table was they should RFA (Radio Frequency Ablation) on one of the tumors present in my liver. He told me the others were stable and they would like to watch those and others with repeated MRI's. Not my most favorite test but I guess if it gives the docs a better view why not just suffer through them.
I wondered exactly what stable meant but never really asked the doc. A couple days ago we received a UPS package. Leah opened it promptly to find the Discs of my MRI and PET-CT scans. I looked a little closer at the package when I got home only to find reports from radiologists at U of M. To summarize what the report said I have one tumor that is metastatic in behavior. Another appears as maybe metastatic or possibly cystic in behavior. The remaining 3 or 4 are believed to be Post-Surgical Cystic. So in plain English I have 3-4 that are cysts and one that might be on it's way to becoming a cyst. For those they will be watching via follow-up MRI's The one they are most concerned about is a small tumor near the upper middle part of the liver.
Today I travelled to Ann Arbor for an ultrasound of my Liver. This was the first step in a 2 step process to perform RFA on this tumor of concern. On the phone call with my doctor I had asked if this was surgery. He said no and quickly explained this was done through a needle in my abdomen. My frame of reference was to compare this to my liver biopsy I had in Grand Rapids. This is the only other time someone stuck a needle in my abdomen. I assumed sedation and the rest was similar to that time which was a walk in / walk out same day type of appointment. I was surprised to hear all the details of the procedure (many of which I will spare you). This sounded a whole lot more involved than I was expecting. Full sedation, Breathing tube down my throat, and a whopping 5 hour recovery after the procedure. I realized I likely wouldn't be driving home but sort of expected I would be returning to work the next day. Leah asked that only to hear the response I shouldn't lift heavy things for a week and I should probably stay home from work for a couple days. That was even after we explained I had a desk job. So this whole venture is much more like surgery than I originally thought. I have always been a big fan of Burn outs and since this is supposed to burn out one of the tumors I am trying put excitement above my hesitation and concern.
This procedure is to take place on October 2. We need to arrive 2 hours before the scheduled noon procedure and will likely get to be escorted away from the hospital late evening that day.
Prayers for peace and safety and effectiveness of the procedure are greatly appreciated.
--Kent
I wondered exactly what stable meant but never really asked the doc. A couple days ago we received a UPS package. Leah opened it promptly to find the Discs of my MRI and PET-CT scans. I looked a little closer at the package when I got home only to find reports from radiologists at U of M. To summarize what the report said I have one tumor that is metastatic in behavior. Another appears as maybe metastatic or possibly cystic in behavior. The remaining 3 or 4 are believed to be Post-Surgical Cystic. So in plain English I have 3-4 that are cysts and one that might be on it's way to becoming a cyst. For those they will be watching via follow-up MRI's The one they are most concerned about is a small tumor near the upper middle part of the liver.
Today I travelled to Ann Arbor for an ultrasound of my Liver. This was the first step in a 2 step process to perform RFA on this tumor of concern. On the phone call with my doctor I had asked if this was surgery. He said no and quickly explained this was done through a needle in my abdomen. My frame of reference was to compare this to my liver biopsy I had in Grand Rapids. This is the only other time someone stuck a needle in my abdomen. I assumed sedation and the rest was similar to that time which was a walk in / walk out same day type of appointment. I was surprised to hear all the details of the procedure (many of which I will spare you). This sounded a whole lot more involved than I was expecting. Full sedation, Breathing tube down my throat, and a whopping 5 hour recovery after the procedure. I realized I likely wouldn't be driving home but sort of expected I would be returning to work the next day. Leah asked that only to hear the response I shouldn't lift heavy things for a week and I should probably stay home from work for a couple days. That was even after we explained I had a desk job. So this whole venture is much more like surgery than I originally thought. I have always been a big fan of Burn outs and since this is supposed to burn out one of the tumors I am trying put excitement above my hesitation and concern.
This procedure is to take place on October 2. We need to arrive 2 hours before the scheduled noon procedure and will likely get to be escorted away from the hospital late evening that day.
Prayers for peace and safety and effectiveness of the procedure are greatly appreciated.
--Kent
Thursday, September 12, 2013
More news
I missed the text. I was teaching along with the 4's preschool teacher, the first day of school. I love the first day. All those cute adorable kids walk through the door in their first day outfits and handsome hair du's and cute pigtails and braids. My heart just wasn't in it today. Don't get me wrong I loved it but.... while I was having fun, my other half was in Grand Rapids having a lab and getting ready to have chemo? That is when I received the text. " I am on my way home, I am not receiving chemo." What? Why? Well Kent earlier this week has had some sinus pressure and he thought it was allergies but now is most likely a cold. His Neutrophils were 200 and normal is 1500 to 7700. Wow ! His white blood count was low as well. So we have been pushed out 4 weeks without chemo. He received two treatments this round and we were pushed out a week due to a meeting in Ann Arbor with a Liver Transplant surgeon last week Thursday and now due to a cold. Next week will be week 4 and yet another attempt to get chemo.
In Ann Arbor today a GI board met reviewing Kent's case. A group of Dr's. get together and talk about what is possible and doable for Kent giving him the best possible quality to his health. Today at one o'clock this afternoon, Kent received a call from the surgeon, and he told Kent this. One tumor would be able to have a (RFA) Radio Frequency Ablation, and the other tumors are stable at this point and that he thought chemo would continue to be the best option for those. I did ask Kent what they were thinking about the lymph node? At one point the surgeon was thinking that the lymph node was cancerous. Kent said, he had forgotten to ask that, so we have a call into them for answers.
At this point, here are the dates and info regarding future appointments that we will be asking for prayers for 1)Dr appointment on Wednesday Sept 18 to discuss the Ann Arbor treatments with Kent's oncologist 2) Chemo on Thursday the Sept.19 th 3) Radiologist appointment on the 23 rd of Sept. to get answers on Theraspheres 4) Chemo again or learning when we would do RFA whatever comes first. As you can see Kent has quite the busy schedule.
We want to tell each one of you that we would not make it without any of you. You all play an important role in helping us get though this journey. Weather you have made us a meal or given us a hug, prayed for us, sent us a email, FB message, or helped us in anyway driving us or giving Lydia extra love , we CAN NOT say THANK YOU enough. We are blown away by the Love and care. As your busy fall school year begins I pray all those moments you have cared for us will return to you . I pray you have a great week. Stay tuned to the next week and we will update what is happening.
In Ann Arbor today a GI board met reviewing Kent's case. A group of Dr's. get together and talk about what is possible and doable for Kent giving him the best possible quality to his health. Today at one o'clock this afternoon, Kent received a call from the surgeon, and he told Kent this. One tumor would be able to have a (RFA) Radio Frequency Ablation, and the other tumors are stable at this point and that he thought chemo would continue to be the best option for those. I did ask Kent what they were thinking about the lymph node? At one point the surgeon was thinking that the lymph node was cancerous. Kent said, he had forgotten to ask that, so we have a call into them for answers.
At this point, here are the dates and info regarding future appointments that we will be asking for prayers for 1)Dr appointment on Wednesday Sept 18 to discuss the Ann Arbor treatments with Kent's oncologist 2) Chemo on Thursday the Sept.19 th 3) Radiologist appointment on the 23 rd of Sept. to get answers on Theraspheres 4) Chemo again or learning when we would do RFA whatever comes first. As you can see Kent has quite the busy schedule.
We want to tell each one of you that we would not make it without any of you. You all play an important role in helping us get though this journey. Weather you have made us a meal or given us a hug, prayed for us, sent us a email, FB message, or helped us in anyway driving us or giving Lydia extra love , we CAN NOT say THANK YOU enough. We are blown away by the Love and care. As your busy fall school year begins I pray all those moments you have cared for us will return to you . I pray you have a great week. Stay tuned to the next week and we will update what is happening.
Thursday, September 5, 2013
You take the good, You take the bad, You take them both and......
Today I took a trip to Ann Arbor to see a Liver Transplant Surgeon.
We asked him whether I was a candidate for a transplant. He said no due to the fact I would have to have anti Rejection (Immune system suppressant) the cancer would likely spread all over and be deadly.
So what are the facts of life you ask....
First of all Systemic Chemo is a good option and currently it is working so we are going to continue with that. For localized Chemo he usually doesn't begin those until Systemic Chemo begins to fail. One of the Localized Chemo options is called Hepatic Artery Infusion. He also said though they do very few of them they only trust very few Oncologists with the care of the pump that would need to be installed. He would need to talk with my Oncologist first before ensuring they can do this option.
We brought up TheraSpheres but he didn't really talk about them much other than to say they do them there. We brought up our hesitation and the fact that Moffitt Cancer Center in Tampa stopped this same treatment. He responded with the fact that they still did them.
He still wants to see the MRI Images I had taken in early August since all he has is the report from it. He will look at that and then show it to their local Radiologist. After which he will be presenting my case to their GI tumor board. He will then have the opinion of Radiology, Radiation docs, and other Surgeons. He will call me after talking with the GI Tumor Board.
The only other thing we heard that we weren't expecting is the fact that he thinks the enlarged Lymph Node is Cancerous. The treatment for this would be systemic chemo. Since we are already doing this I guess we nee to decide on the next treatment option. He may decide to have the Lymph node biopsied to prove this theory.
Until next Thursday while under Chemo I will get a call from this doctor to hear what the Ann Arbor Tumor Board talked about.
More from me at that point.
--Kent
We asked him whether I was a candidate for a transplant. He said no due to the fact I would have to have anti Rejection (Immune system suppressant) the cancer would likely spread all over and be deadly.
So what are the facts of life you ask....
First of all Systemic Chemo is a good option and currently it is working so we are going to continue with that. For localized Chemo he usually doesn't begin those until Systemic Chemo begins to fail. One of the Localized Chemo options is called Hepatic Artery Infusion. He also said though they do very few of them they only trust very few Oncologists with the care of the pump that would need to be installed. He would need to talk with my Oncologist first before ensuring they can do this option.
We brought up TheraSpheres but he didn't really talk about them much other than to say they do them there. We brought up our hesitation and the fact that Moffitt Cancer Center in Tampa stopped this same treatment. He responded with the fact that they still did them.
He still wants to see the MRI Images I had taken in early August since all he has is the report from it. He will look at that and then show it to their local Radiologist. After which he will be presenting my case to their GI tumor board. He will then have the opinion of Radiology, Radiation docs, and other Surgeons. He will call me after talking with the GI Tumor Board.
The only other thing we heard that we weren't expecting is the fact that he thinks the enlarged Lymph Node is Cancerous. The treatment for this would be systemic chemo. Since we are already doing this I guess we nee to decide on the next treatment option. He may decide to have the Lymph node biopsied to prove this theory.
Until next Thursday while under Chemo I will get a call from this doctor to hear what the Ann Arbor Tumor Board talked about.
More from me at that point.
--Kent
Tuesday, August 27, 2013
A mazin Blue
Previously my surgeon wanted to wait and watch the tumors. This is not an option according to me or my Oncologist. Thus the reason we started Chemo last Thursday. Yesterday I got a call from my Oncologist to talk about treatment options. Two options are TheraSpheres or Hepatic Artery Infusion. During our conversation he indicated He would personally choose TheraSpheres over Hepatic Artery Infusion were he in my case. I respect his opinion but still have reservations about the procedure. He is referring me to talk with one of the Radiologists who perform this procedure in town. This will allow us to get our questions answered about TheraSpheres and Carcinoid vs Carcinoma Cancer.
He also thinks it wise for us to see a second opinion to help us objectively decide which treatment option would be safest and best. He is referring us to University of Michigan to get what we hope is an unbiased opinion.
Both of these appointments should happen within the next few weeks. Until then we are hanging on for the ride.
--Kent
He also thinks it wise for us to see a second opinion to help us objectively decide which treatment option would be safest and best. He is referring us to University of Michigan to get what we hope is an unbiased opinion.
Both of these appointments should happen within the next few weeks. Until then we are hanging on for the ride.
--Kent
Friday, August 23, 2013
Who let the tumors out??
Yesterday I met with the PA from my oncologists office. We discussed what happened since the Pet scan done middle of July. In that time we met with my surgeon several times, schedule and received an MRI and had my case presented before the GI Tumor Board.
Yesterday we brought up the question of how many tumors actually existed in my liver since we hear several different numbers at each appointment. The PA and the rest of us read carefully through the MRI report to count the number of tumors. We all came up with 5 Tumors including the 2 that are growing. Again due to the number and the varied location of these tumors RFA (surgery) is not an option. My oncologists also agreed that wait and watch is also not an option. We don't have real answers on whether TheraSpheres are a safe option or whether we can push forward with Hepatic Artery infusion. We will need to talk with Intervention Radiologist to get all our questions answered about safety and overall procedure.
Since we all felt Wait and Watch wasn't an option I was tossed back into a chemo schedule that started yesterday. I will receive it every 2 weeks until We make a decision on the next major step of treatment. Unfortunately I did not feel well the evening of treatment yesterday.
I'm hoping we come to an agreement on treatment soon.
--Kent
Yesterday we brought up the question of how many tumors actually existed in my liver since we hear several different numbers at each appointment. The PA and the rest of us read carefully through the MRI report to count the number of tumors. We all came up with 5 Tumors including the 2 that are growing. Again due to the number and the varied location of these tumors RFA (surgery) is not an option. My oncologists also agreed that wait and watch is also not an option. We don't have real answers on whether TheraSpheres are a safe option or whether we can push forward with Hepatic Artery infusion. We will need to talk with Intervention Radiologist to get all our questions answered about safety and overall procedure.
Since we all felt Wait and Watch wasn't an option I was tossed back into a chemo schedule that started yesterday. I will receive it every 2 weeks until We make a decision on the next major step of treatment. Unfortunately I did not feel well the evening of treatment yesterday.
I'm hoping we come to an agreement on treatment soon.
--Kent
Tuesday, August 13, 2013
Where are the answers?
Yesterday we met with my liver surgeon to go over what the MRI showed and what the GI tumor board had to say about my case.
As far the GI tumor board and My case, My surgeon has not presented that yet. He was on vacation so that will happen this Thursday. I need to contact my oncologist since sometime he attends this meeting and sometimes does not.
I also will need to follow up with them after Thursday to see what information I can gain from them. I have an appointment with each Doctor next week.
The MRI taken August 6 shows the 2 tumors but also shows some other
nodules - probably microscopic at the time of the PET scan taken July 18. He is
not sure they are cancer but given everything we know - more than likely they
are cancer. The two bigger/more visible tumors have grown a few mm since the PET
scan as well. But they are still considered very small and He does not
feel that he would be able to see them well enough to do an ablation on them. He
is still very much wanting to do a TheraSphere treatment. We again told him
our hesitancy to do TheraSpheres due to the fact that the Hospital Leah's Dad had this done at is no longer doing this treatment.
We also asked about a treatment called Hepatic Artery Infusion. This is a treatment where a pump is installed under the skin (via surgery). This pump delivers Chemo (probably the same flavor as I was already getting in my pump) directly to the liver via the Hepatic Artery. My surgeon was
willing to consider this treatment but has only done this a 7 times himself and claims none of them have been very effective.
We feel as though we should find someone with more experience doing this sort of therapy
His options of preferred "treatment" were to wait and watch or TheraSpheres. Since the tumors are already showing signs of
growth when the chemo was stopped, neither of these are favorable options for us.
As far the GI tumor board and My case, My surgeon has not presented that yet. He was on vacation so that will happen this Thursday. I need to contact my oncologist since sometime he attends this meeting and sometimes does not.
I also will need to follow up with them after Thursday to see what information I can gain from them. I have an appointment with each Doctor next week.
While I meet with my oncologist and talk about maintenance Chemo and likely this Hepatic Artery Infusion. We'll obviously ask about other alternatives for treatment.
Prayers are certainly needed for direction; for stopping the growth of the
tumors; for peace of mind that we are doing the best we can do given all the
info we have been given.
Sunday, August 11, 2013
What's up Doc??
Since My last post here we had an Appointment with my Liver surgeon. Due to the location of one of the remaining tumors he is hesitant to do surgery. I can understand his risk and hesitation but his alternative he suggested is TheraSphere therapy. This is a therapy our family is very familiar with and not very excited about for various reasons. One of those is the Hospital Leah's dad had his done at has since stopped doing this type of treatment.
Since that appointment I have had an MRI to tell exactly the location of the tumor in relation to the Blood Vessel. I am personally hoping the distance allows for RFA (RadioFrequency Ablation) instead of us finding a suitable alternative.
Early tomorrow morning I meet with my surgeon again to find out what he and the GI Tumor board have discovered about my case. This appointment is effectively a fork in the road for the future of my treatment course.
More after tomorrow's appointment
--Kent
Since that appointment I have had an MRI to tell exactly the location of the tumor in relation to the Blood Vessel. I am personally hoping the distance allows for RFA (RadioFrequency Ablation) instead of us finding a suitable alternative.
Early tomorrow morning I meet with my surgeon again to find out what he and the GI Tumor board have discovered about my case. This appointment is effectively a fork in the road for the future of my treatment course.
More after tomorrow's appointment
--Kent
Thursday, July 25, 2013
Clean!
Today we met with my Oncologist. He told us about the results of the scan.
Before I tell scan results I need to explain that a PET shows activity level the CT shows size and location.
So my oncologist explained that the PET shows that there is no active cancer. Good news right? Well sort of. The CT shows there are 2 spots in the Liver and both shrunk. Good news right?
Well sort of.
This is all really good news but if you were there when I got the report in May from my previous scan they saw 4 spots in the liver and a nodule outside the liver. So now you are asking what happened to the other 2 spots and the nodule. They are suspecting they are Fluid collections or post surgical inflammation. Actually they also said the area they reconnected my colon also showed activity in May and that also shows no activity.
So here's the plan. We had a 3 month follow up with my Liver surgeon just as a precautionary measure. That appointment is Jul 31st. That will be my surgical consult appointment. There we will discuss the possibility of RFA or Radio Frequency Ablation. With that they Burn the spots out of the liver. The spots are at a size they are still visible so this is a great time for surgery. Also while in surgery the hope is the surgeon will do an ultrasound on the other spots to see what those are since those are not suspected as cancer.
So overall this is really good news, we just need to find out what the future holds. More sit and wait but that should be o.k.
-- Kent
Before I tell scan results I need to explain that a PET shows activity level the CT shows size and location.
So my oncologist explained that the PET shows that there is no active cancer. Good news right? Well sort of. The CT shows there are 2 spots in the Liver and both shrunk. Good news right?
Well sort of.
This is all really good news but if you were there when I got the report in May from my previous scan they saw 4 spots in the liver and a nodule outside the liver. So now you are asking what happened to the other 2 spots and the nodule. They are suspecting they are Fluid collections or post surgical inflammation. Actually they also said the area they reconnected my colon also showed activity in May and that also shows no activity.
So here's the plan. We had a 3 month follow up with my Liver surgeon just as a precautionary measure. That appointment is Jul 31st. That will be my surgical consult appointment. There we will discuss the possibility of RFA or Radio Frequency Ablation. With that they Burn the spots out of the liver. The spots are at a size they are still visible so this is a great time for surgery. Also while in surgery the hope is the surgeon will do an ultrasound on the other spots to see what those are since those are not suspected as cancer.
So overall this is really good news, we just need to find out what the future holds. More sit and wait but that should be o.k.
-- Kent
Thursday, July 18, 2013
HOT SPOT
Hot Spots!
Today, it was hot! You couldn't find a cool spot anywhere outside. Patios at restaurants were not even sitting anyone outside. Children all over were in sprinklers or pools, in AC or in front of fans. The Miranda park party even had mister fans and Fro Yo stores and Ice cream shops were most likely lined out the doors.
While you all were trying to stay away from Hot Spots there was a Radiologist at a cancer center in GR trying to find hot spots of cancer in Kent. Kent is often full of nerves and scared to go for PET Scans. Today was no exception. Hot spots scare him. They usually mean that there is active Cancer. So Kent is trying to stay cool and praying for no Hot spots. We won't find out until our appt. on July 25. We ask you to pray for no hot spots! Tonight a friend that we know from attending a local restraint for years, gave Kent a little pep talk that she was Praying and dotting her I's and crossing her T's. There are a lot of people that are routing for you. We are not sure how much faith she has but Kent took that to heart and applied it to God is right by his side along with several fiends who have walked right by us. He also told me the song they were playing in the Scan as he was starting was 10,000 reasons . I have no Doubt that God is right by his and our side.
We are blest! We are so thankful! Today as we were away, we came home to our Lawn mowed! Wow! In 94 plus degree weather. I can't say enough thank yous to this individual. People constantly call, send letters, texts, make meals, and do house maintenance without provisions, and do favors that make us tear up. THANK YOU! You all help us and we are humbled and thank you for helping us through the hot spots.
Kent will Have a few appts. in the next few weeks that will determine his next phase of treatment and it will go as follows-- 1. July 25 , he will have a DR. appt. at 8:30 am discussing the PET scan and talking over what is best for him and then treatment to follow. 2. July 31, at 1pm he will meet with his surgeon to discuss surgery and what his idea of treatment will look like. Please pray as we hope to get good results and we are all are on the same page in a treatment plan.
On another note I just want to say a thank you to those who have helped Lydia cope with the loss of my dad, for taking her during times when she was down and needed a little encouragement. She has had many people care for her and Kent and I have really appreciate all of you.
So the next time you are in a Hot spot could I ask you to think of Kent and our family as hot spots are not just outside for us but a medical reality. We love you all and pray daily for all of you as you have been a blessing to us during hot spots.
Leah, for the whole De Young Clan!
Today, it was hot! You couldn't find a cool spot anywhere outside. Patios at restaurants were not even sitting anyone outside. Children all over were in sprinklers or pools, in AC or in front of fans. The Miranda park party even had mister fans and Fro Yo stores and Ice cream shops were most likely lined out the doors.
While you all were trying to stay away from Hot Spots there was a Radiologist at a cancer center in GR trying to find hot spots of cancer in Kent. Kent is often full of nerves and scared to go for PET Scans. Today was no exception. Hot spots scare him. They usually mean that there is active Cancer. So Kent is trying to stay cool and praying for no Hot spots. We won't find out until our appt. on July 25. We ask you to pray for no hot spots! Tonight a friend that we know from attending a local restraint for years, gave Kent a little pep talk that she was Praying and dotting her I's and crossing her T's. There are a lot of people that are routing for you. We are not sure how much faith she has but Kent took that to heart and applied it to God is right by his side along with several fiends who have walked right by us. He also told me the song they were playing in the Scan as he was starting was 10,000 reasons . I have no Doubt that God is right by his and our side.
We are blest! We are so thankful! Today as we were away, we came home to our Lawn mowed! Wow! In 94 plus degree weather. I can't say enough thank yous to this individual. People constantly call, send letters, texts, make meals, and do house maintenance without provisions, and do favors that make us tear up. THANK YOU! You all help us and we are humbled and thank you for helping us through the hot spots.
Kent will Have a few appts. in the next few weeks that will determine his next phase of treatment and it will go as follows-- 1. July 25 , he will have a DR. appt. at 8:30 am discussing the PET scan and talking over what is best for him and then treatment to follow. 2. July 31, at 1pm he will meet with his surgeon to discuss surgery and what his idea of treatment will look like. Please pray as we hope to get good results and we are all are on the same page in a treatment plan.
On another note I just want to say a thank you to those who have helped Lydia cope with the loss of my dad, for taking her during times when she was down and needed a little encouragement. She has had many people care for her and Kent and I have really appreciate all of you.
So the next time you are in a Hot spot could I ask you to think of Kent and our family as hot spots are not just outside for us but a medical reality. We love you all and pray daily for all of you as you have been a blessing to us during hot spots.
Leah, for the whole De Young Clan!
Thursday, July 11, 2013
Down!!
I believe it is safe to breath again. I've blown all the dust off and the cloud of dust from the last month is sure to have settled by now. The last month has been very busy for us with Vacation Bible School prep, late spring cleaning, and medical treatments.
Today I am getting treatment number 5. We met with the Doc this morning to go over how treatment has been going. The meeting was mostly par for the course. The two things that were "new' were the following. First we found out today that My CEA level had gone up at my Pet scan in early May. I was surprised to find this out. From the very beginning of treatment a year ago my CEA level has run in the normal range. This is the main reason I have Pet scans to see what the progress is. The doc indicated since the CEA was up at the last PET scan it had fallen down back into the normal range. This is optimistic news. However since we are talking about miniscule changes neither the doc or I want to rely on only the CEA test and want to see what a PET shows. My CEA had gone up to 4 which is 1 pt above normal. It is now back to 2.5 as of today which is right in the middle of the normal range. So this coming week a PET CT scan to show size and activity level.
The other thing that was "new" is reducing the amount of one of my medications. Chemo therapy these days is as much about the Cancer Killing drugs as it is for side effect controlling drugs. This Chemo has a side effect of diarrhea and a medication to counteract it. Since I have been fighting constipation the last several treatments, the doc chose to lower the dose of the medication the counteracts the diarrhea. Not sure I'm excited about more of that however it might be better than constipation.
I'm praying for really good results from the PET then we meet with the doc in 2 weeks to discuss the results of the scan, what that means for future treatments, and where we go from that point. This likely means another discussion with my surgeon as well as another doc that offers a "new" treatment here in town. This treatment is not something we are willing to do at this point since we noticed negative results in the long term from this treatment when Leah's dad had it. If and when we meet with this doc we will point him to the research we've found and he will need to convince us this treatment is 100% effective in the long term.
In 2 weeks we have VBS Monday - Wednesday, then Thursday is Doc appointment and possibly treatment # 6. Then we hope to find some time this summer to pack in a short vacation not to far from home.
We would love prayers for the 25th of July. That is when we'll start planning what the future of treatments looks like.
I want to take a moment to thank everyone who has been so supportive the last couple of months. From those who watch Lydia during treatment days, to those bringing meals to our home or to treatment, to those caring for the home and yard. I especially want to thank all of you for your prayers and emotional support. Our family really appreciates these ways you care for us.
--Kent
Today I am getting treatment number 5. We met with the Doc this morning to go over how treatment has been going. The meeting was mostly par for the course. The two things that were "new' were the following. First we found out today that My CEA level had gone up at my Pet scan in early May. I was surprised to find this out. From the very beginning of treatment a year ago my CEA level has run in the normal range. This is the main reason I have Pet scans to see what the progress is. The doc indicated since the CEA was up at the last PET scan it had fallen down back into the normal range. This is optimistic news. However since we are talking about miniscule changes neither the doc or I want to rely on only the CEA test and want to see what a PET shows. My CEA had gone up to 4 which is 1 pt above normal. It is now back to 2.5 as of today which is right in the middle of the normal range. So this coming week a PET CT scan to show size and activity level.
The other thing that was "new" is reducing the amount of one of my medications. Chemo therapy these days is as much about the Cancer Killing drugs as it is for side effect controlling drugs. This Chemo has a side effect of diarrhea and a medication to counteract it. Since I have been fighting constipation the last several treatments, the doc chose to lower the dose of the medication the counteracts the diarrhea. Not sure I'm excited about more of that however it might be better than constipation.
I'm praying for really good results from the PET then we meet with the doc in 2 weeks to discuss the results of the scan, what that means for future treatments, and where we go from that point. This likely means another discussion with my surgeon as well as another doc that offers a "new" treatment here in town. This treatment is not something we are willing to do at this point since we noticed negative results in the long term from this treatment when Leah's dad had it. If and when we meet with this doc we will point him to the research we've found and he will need to convince us this treatment is 100% effective in the long term.
In 2 weeks we have VBS Monday - Wednesday, then Thursday is Doc appointment and possibly treatment # 6. Then we hope to find some time this summer to pack in a short vacation not to far from home.
We would love prayers for the 25th of July. That is when we'll start planning what the future of treatments looks like.
I want to take a moment to thank everyone who has been so supportive the last couple of months. From those who watch Lydia during treatment days, to those bringing meals to our home or to treatment, to those caring for the home and yard. I especially want to thank all of you for your prayers and emotional support. Our family really appreciates these ways you care for us.
--Kent
Saturday, June 8, 2013
A hard and sad day!
Yesterday we said, "See you later," to my Dad. These will be some of the toughest days. This morning I woke up early and it was about the time that my dad would of been up doing his early jog before getting his day started. This day was beautiful outside and often you would find him outside puttering in the yard pondering what he would tell his Sunrise friends on Sunday .He loved life, Loved People, Loved Family, his wife and most of all teaching and training those about Jesus and making an impact on our world.
Today was hard and sad. I called my mom this morning and heard emotion We quickly got ready and left for my moms house. Pictures, flowers and many memories of my dad everywhere. What I would like to share is this ... my mom and dad were simply the best team. The best ministry couple. They complemented each other so well. Where my mom lacked my dad was strong and where my dad was weak my mom was strong, for example thank goodness mom sang and dad preached :) I quickly gave my mom a warm embrace and asked her what I could do. Kent went out and cleaned out my dads car and the two of us, sat down and went through pictures, memorabilia and threw out things that were just stuff. We then put things down stairs and started filing things. Then we left and I again got sad I fear leaving my mom alone. For you see they always complemented each other and I can't stand one of them hurting. It breaks me so bad. I love You Mom with all my heart!
I tried to stay busy today. So many times that my mind just drifts. I know that heaven is are ultimate reward and I can't wait, but part of me just wants more time and knew that my dad had so many things he wanted to do yet. He loved his Church family with all his heart and had so much to do with loving church family. He loved his family and wanted so much to see his grandchildren grow up, he wanted to do so much more with mom. This is just so sad. I can't even understand. I just question. I just cry. I just simply sometimes tremble. Then I do remember, " Be still and know, that I am God.
My dad was tired and weak near the end of his life and I can't help but see the picture of him in heaven. No more pain no more suffering. Loving meeting all those he has taught us about. So until I see him again I will try to do as he has taught me to do. Living each day, caring for others and sharing Christ love.
PS. Could I ask you to partner in praying for my mom, siblings and grandchildren. This road ahead is new and we need strength and love. Thank you to ALL of you for all you have done already to help us in this journey. We are simply humbled.
Leah
Today was hard and sad. I called my mom this morning and heard emotion We quickly got ready and left for my moms house. Pictures, flowers and many memories of my dad everywhere. What I would like to share is this ... my mom and dad were simply the best team. The best ministry couple. They complemented each other so well. Where my mom lacked my dad was strong and where my dad was weak my mom was strong, for example thank goodness mom sang and dad preached :) I quickly gave my mom a warm embrace and asked her what I could do. Kent went out and cleaned out my dads car and the two of us, sat down and went through pictures, memorabilia and threw out things that were just stuff. We then put things down stairs and started filing things. Then we left and I again got sad I fear leaving my mom alone. For you see they always complemented each other and I can't stand one of them hurting. It breaks me so bad. I love You Mom with all my heart!
I tried to stay busy today. So many times that my mind just drifts. I know that heaven is are ultimate reward and I can't wait, but part of me just wants more time and knew that my dad had so many things he wanted to do yet. He loved his Church family with all his heart and had so much to do with loving church family. He loved his family and wanted so much to see his grandchildren grow up, he wanted to do so much more with mom. This is just so sad. I can't even understand. I just question. I just cry. I just simply sometimes tremble. Then I do remember, " Be still and know, that I am God.
My dad was tired and weak near the end of his life and I can't help but see the picture of him in heaven. No more pain no more suffering. Loving meeting all those he has taught us about. So until I see him again I will try to do as he has taught me to do. Living each day, caring for others and sharing Christ love.
PS. Could I ask you to partner in praying for my mom, siblings and grandchildren. This road ahead is new and we need strength and love. Thank you to ALL of you for all you have done already to help us in this journey. We are simply humbled.
Leah
Friday, June 7, 2013
Goodbye
Today we will say goodbye to Leah's Dad, David P Breen. The service will be broadcast on livestream. You can view the service by going to http://new.livestream.com/beechwoodchurch/davidbreen.
I would like to thank each person that has called, written on facebook, texted, given a meal, gave a hug of encouragement or came to the visitation. I will hold dear what each one has said. Each story was different and to hear how my dad helped or encouraged them or just was there to be a listening ear, was simply amazing.
Even though we will lay my dad to rest today, there will not be a day that goes by that I will not think about all the things that he has taught me. Caring for others and Loving others and Living for Jesus!
Today we will celebrate that David P. Breen is cancer free and pain free. He is talking with so many he has preached about. Thank you again for all you love and care. We are simply humbled. Kent and Leah and Lydia.
I would like to thank each person that has called, written on facebook, texted, given a meal, gave a hug of encouragement or came to the visitation. I will hold dear what each one has said. Each story was different and to hear how my dad helped or encouraged them or just was there to be a listening ear, was simply amazing.
Even though we will lay my dad to rest today, there will not be a day that goes by that I will not think about all the things that he has taught me. Caring for others and Loving others and Living for Jesus!
Today we will celebrate that David P. Breen is cancer free and pain free. He is talking with so many he has preached about. Thank you again for all you love and care. We are simply humbled. Kent and Leah and Lydia.
Thursday, May 30, 2013
On the other side!
Where do I begin today's thoughts? The last few days, I have thought a lot about life and how precious it is. April, 2005 and May, 2012 and 2013 have made me stop and think each day given to us is a gift. Each day from here on until I see Jesus I will live the way that my dad would be proud and has taught me. Jesus First, Yourself last and others in between.
From one side to the other side.... On Monday evening, (Memorial Day) my dad was admitted into the hospital for severe confusion and very dangerous Ammonia levels. His Ammonia levels were at his highest were 282. The brain has severe brain damage when the levels reach that high. My dad was in a responsive state for about roughly a day. He was then unresponsive there after due to the lack of brain function. Wednesday, the whole family(Breen , Chapman, and De Young's) were at my dad's side. The grandchildren were able to talk to him telling him Bible Stories and songs and I know my Dad could sense their presence. The Adults were recalling many stories about my dad and thinking of many "Dave" isms. Today, I went and sat next to my dad's side and I just loving being next to him.
Today, is Thursday and on the other side of Michigan Street, I sat in a Chair next to my husband, whom I love and am very proud of. He too, is fighting...Fighting to get rid of the cancer that has crept back into his life. Two weeks ago I sat at the cancer pavilion by him and he was so sick. Today, was another story. Was he tired? Yes. Today, he worked a little, he ate a little and he even joked. That is something that would not of even happened last week. I am so grateful for the little glimpse's of hope that Jesus gives us in the reality of what is happening. We were at the cancer pavilion a little longer today due to what happened Two weeks ago. They first pumped him with fluids then administered Anti- nausea meds. They then moved to giving him a bio- agent and then premeds and finally the chemo itself. Today, we were grateful to have family friends right by our side. It was so nice that Keith was able to stay right by Kent as I was able to leave for a short while and visit my dad. Greg then escorted me across the busy Street, (for those who know me know that I feel uneasy about busy traffic) A big thank you to both of them who have helped ease my mind while it spins in this world that I can't believe I'm in. We were at the cancer pavilion from roughly 10:30 am to roughly 6 pm. That was the longest I feel we have been there since our first visit in the infusion area. We will now anticipate the removal of his pump on Saturday.
As I have been thinking a lot today, I have been thinking about a thought, a thought that a dear friend, mentioned to me a day ago. I know that my dad's battle will soon be done, but he has won when he sees Jesus face. Our dear friend's question was this. What will Dave's face look like when he sees Jesus? I don't know but I think that I have a pretty good idea. I can't wait for that day!
So I leave you with this, Live every day with passion! A passion of Jesus Christ in your heart that others may know that you live with Jesus in your heart and there is no question that you will see Jesus face as soon my dad will. Live Out loud! I will. Will you?
From one side to the other side.... On Monday evening, (Memorial Day) my dad was admitted into the hospital for severe confusion and very dangerous Ammonia levels. His Ammonia levels were at his highest were 282. The brain has severe brain damage when the levels reach that high. My dad was in a responsive state for about roughly a day. He was then unresponsive there after due to the lack of brain function. Wednesday, the whole family(Breen , Chapman, and De Young's) were at my dad's side. The grandchildren were able to talk to him telling him Bible Stories and songs and I know my Dad could sense their presence. The Adults were recalling many stories about my dad and thinking of many "Dave" isms. Today, I went and sat next to my dad's side and I just loving being next to him.
Today, is Thursday and on the other side of Michigan Street, I sat in a Chair next to my husband, whom I love and am very proud of. He too, is fighting...Fighting to get rid of the cancer that has crept back into his life. Two weeks ago I sat at the cancer pavilion by him and he was so sick. Today, was another story. Was he tired? Yes. Today, he worked a little, he ate a little and he even joked. That is something that would not of even happened last week. I am so grateful for the little glimpse's of hope that Jesus gives us in the reality of what is happening. We were at the cancer pavilion a little longer today due to what happened Two weeks ago. They first pumped him with fluids then administered Anti- nausea meds. They then moved to giving him a bio- agent and then premeds and finally the chemo itself. Today, we were grateful to have family friends right by our side. It was so nice that Keith was able to stay right by Kent as I was able to leave for a short while and visit my dad. Greg then escorted me across the busy Street, (for those who know me know that I feel uneasy about busy traffic) A big thank you to both of them who have helped ease my mind while it spins in this world that I can't believe I'm in. We were at the cancer pavilion from roughly 10:30 am to roughly 6 pm. That was the longest I feel we have been there since our first visit in the infusion area. We will now anticipate the removal of his pump on Saturday.
As I have been thinking a lot today, I have been thinking about a thought, a thought that a dear friend, mentioned to me a day ago. I know that my dad's battle will soon be done, but he has won when he sees Jesus face. Our dear friend's question was this. What will Dave's face look like when he sees Jesus? I don't know but I think that I have a pretty good idea. I can't wait for that day!
So I leave you with this, Live every day with passion! A passion of Jesus Christ in your heart that others may know that you live with Jesus in your heart and there is no question that you will see Jesus face as soon my dad will. Live Out loud! I will. Will you?
Sunday, May 19, 2013
Round 3
Chemo day! Round 3!Complete.
Well The start of round 1 and 2 was much easier.
Where do we begin.... well Kent started his chemo roughly at 12:00 pm on Thursday. "Our nurse," came and started administering the drugs and I could tell Kent was not ready for this. He was very "depressed." As the nurse started the drug she asked we had any questions... the only thing I asked was if the new bio agent had any side affects and her answer was, "no, it was a lot like the other one", he had received. So then we preceded, I could tell half way into the treatment he was uncomfortable and not quite the way he normally felt. He was feeling very uneasy, restless, and had some things that just didn't add up to being "fine." When we were almost done Kent looked a little more whipped than what he normally does. Like always I secretly worried, but trudged him home. When we were home for the evening, we were sitting watching evening TV and off Kent went with a little more urgency than normal to the restroom. This continued the evening and somehow he skipped the sleeping hrs and then again in the morning started up again. I then called the Chemo nurse in the morning and she told me, "If he continues we will get him in that afternoon and pump him with fluids and anti nausea meds." He kept losing more, so we journeyed to the Cancer Pavillion. I was wondering what we did different, I questioned what I did wrong as the caregiver, I prayed that he would get better soon. I was so wanting the old Kent to return. The one that laughs and jokes, the one that usually can out run me and now can barely walk to the bedroom because all the energy was zapped out from under him. On Friday evening we came home from the cancer Pavillion and he slept from 5 pm until 10 30 pm and then I woke him up to go to bed. He continued to sleep until about 930 am. The fluids seemed to help. What I haven't told you yet is this... I asked them, "What was different beside the bio agent that you gave him." She went back and reviewed his chart and said," He didn't get one of the Anti nausea meds." I said, "ohhhhhhh. She told both Kent and I and Kent's Mom who was with us "don't worry, I hit the doctor already for you" and I said " Please don't we need him." :)
All weekend Kent has struggled, he has been very restless and uncomfortable. He has been hot then cold, has had no appetite and his comfort food of choice has been dry Honey Nut Cheerios. He has slept off and on and had very little to no sense of humor. For those who know Kent that is just not him. As a caregiver this just has not been easy to watch. I am not complaining but I just wish that I could take the illness from the most important men in my life away with the snap of a finger. Many of you know about my dad and his cancer journey but Kent's Dad has some struggles with advanced Alzheimer's. I Love these 3 and it is so hard to watch them all suffer and leads me to say, "Why GOD?!"
So tomorrow starts a new week and I think when Kent usually starts his week after chemo back at work he will take one more day at home. He will try to log in a few hours. I think it will be good for him as he needs to get back to "normal."
So I ask one thing. Please Keep praying. This has put a toll on our whole family. Lydia is doing pretty well with it all but is scared when Dad is so sick. Then she also has Papa she prays for every night and her Grandpa. This little Girl is so confused and is being forced to grow up before our eyes.
We are blessed. We have so many who have taken Lydia so she can have "normal." Those who have brought meals, those who have helped on our lawn, who have transported and many more , to all of you I say Thank You from the bottom of our hearts.
--Leah
P.S. A little note from Kent. I thank you all for your prayers and concerns. I am finally starting to feel a little better from the rest of this weekend. I hope my appetite and energy level returns on Tuesday as it has in the past.
-- Kent
Well The start of round 1 and 2 was much easier.
Where do we begin.... well Kent started his chemo roughly at 12:00 pm on Thursday. "Our nurse," came and started administering the drugs and I could tell Kent was not ready for this. He was very "depressed." As the nurse started the drug she asked we had any questions... the only thing I asked was if the new bio agent had any side affects and her answer was, "no, it was a lot like the other one", he had received. So then we preceded, I could tell half way into the treatment he was uncomfortable and not quite the way he normally felt. He was feeling very uneasy, restless, and had some things that just didn't add up to being "fine." When we were almost done Kent looked a little more whipped than what he normally does. Like always I secretly worried, but trudged him home. When we were home for the evening, we were sitting watching evening TV and off Kent went with a little more urgency than normal to the restroom. This continued the evening and somehow he skipped the sleeping hrs and then again in the morning started up again. I then called the Chemo nurse in the morning and she told me, "If he continues we will get him in that afternoon and pump him with fluids and anti nausea meds." He kept losing more, so we journeyed to the Cancer Pavillion. I was wondering what we did different, I questioned what I did wrong as the caregiver, I prayed that he would get better soon. I was so wanting the old Kent to return. The one that laughs and jokes, the one that usually can out run me and now can barely walk to the bedroom because all the energy was zapped out from under him. On Friday evening we came home from the cancer Pavillion and he slept from 5 pm until 10 30 pm and then I woke him up to go to bed. He continued to sleep until about 930 am. The fluids seemed to help. What I haven't told you yet is this... I asked them, "What was different beside the bio agent that you gave him." She went back and reviewed his chart and said," He didn't get one of the Anti nausea meds." I said, "ohhhhhhh. She told both Kent and I and Kent's Mom who was with us "don't worry, I hit the doctor already for you" and I said " Please don't we need him." :)
All weekend Kent has struggled, he has been very restless and uncomfortable. He has been hot then cold, has had no appetite and his comfort food of choice has been dry Honey Nut Cheerios. He has slept off and on and had very little to no sense of humor. For those who know Kent that is just not him. As a caregiver this just has not been easy to watch. I am not complaining but I just wish that I could take the illness from the most important men in my life away with the snap of a finger. Many of you know about my dad and his cancer journey but Kent's Dad has some struggles with advanced Alzheimer's. I Love these 3 and it is so hard to watch them all suffer and leads me to say, "Why GOD?!"
So tomorrow starts a new week and I think when Kent usually starts his week after chemo back at work he will take one more day at home. He will try to log in a few hours. I think it will be good for him as he needs to get back to "normal."
So I ask one thing. Please Keep praying. This has put a toll on our whole family. Lydia is doing pretty well with it all but is scared when Dad is so sick. Then she also has Papa she prays for every night and her Grandpa. This little Girl is so confused and is being forced to grow up before our eyes.
We are blessed. We have so many who have taken Lydia so she can have "normal." Those who have brought meals, those who have helped on our lawn, who have transported and many more , to all of you I say Thank You from the bottom of our hearts.
--Leah
P.S. A little note from Kent. I thank you all for your prayers and concerns. I am finally starting to feel a little better from the rest of this weekend. I hope my appetite and energy level returns on Tuesday as it has in the past.
-- Kent
Thursday, May 16, 2013
Prayers & Support
Chemo Day! Round 3!
Today was the start of a regimen of yet another Summer sitting in a "Chemo Chair." Every other Thursday Kent will be one of many people that sit and receive Chemo.
Today we arrived at the Cancer center and we talked to a social worker. We were talking to her about renewing a grant that would help us offset some of the medical expenses and she informed us we missed the renewal by one day, major bummer! We have a little wiggle room so we will wait to see if anything new comes up and plan that out when the time arises.
Kent then went and had his labs drawn. Every week Kent usually has a certain lab tech that he prefers and she has not been there the last few times. Many of you know that Kent has a unique sense of humor and that lab tech always seemed to "get" Kent.:) We then, get a call into the "Chemo Pod." Kent takes his spot and then quietly waited to learn about the drill this time around. Kent will be on the same Chemo that he was on before. It is called, Folfiri, this name is an acronym for many "drugs" that are administered to him. The Doctor has also added in one new bio agent- Zaltrap. Kent was "hooked up" and within the 1st Hour and a half I could tell that the chemo was taking a toll on his body. He was very tired and became very quiet. I somewhat recall this from the 1st Chemo of round 1 and 2. His body needs to figure out the gruel of the harsh reality of what Chemo does.
On Chemo days Kent and I often sit alone and often talk, or watch videos, or see who we can give a smile to in our "pod" area. Today, we had two visitors one was an old co worker of Kent and the other a new friend from Sunrise. Today, we were encouraged by their love and support. At times, we can get down just from the reality of this terrible disease and it was so nice to be encouraged. We would like to thank both of them for coming out and visiting with us.
One of the last treatments of the last rounds Kent had, Kent met a gentleman that was on a cancer journey himself. They started talking together and built a friendship. Kent asked me today, "I wonder what happen to him." I said, " I have know idea, but maybe we will see him again." as Kent was walking down the isle we saw him and later Kent was able to talk to him. We are very thankful for friendships and others to walk this journey with us.
Speaking of others to journeying with us.... A couple of weeks ago, Kent and My dad received a email from one of their doctors that they were running in the 25 K River Bank Run and they had a goal in mind. Their goal was to finish the race. Not in any record speed but to finish. Along the way he listened to worship songs that my mom (representing my dad) and Kent had given him to listen to as he raced in Honor of them. What many of you need to know is that this Doctor is a true man of God . He as a doctor takes care of Kent and my Dad's medical needs but also is invested in helping them spiritually, and emotionally. He is one of a kind and I myself am fortunate to call him my Doctor as well. We were honored. Many of you know that last year my aunt ran a marathon in honor of Kent and prayed for him as well. We are so honored and thankful that these individuals have invested their quiet time either with music or without, praying for both Kent and my dad. It is a blessing to have such a support system. We say a HUGE THANK YOU!
As I Finish this post I would like to say, How blessed not only the three of us have been but the entire Breen family has been. Many of you have walked along side of us, prayed for us, done practical every day tasks for us, and we can not say enough how much we Love you and are grateful for you! I am overwhelmed with all the care, love and prayers. Leah,
Today was the start of a regimen of yet another Summer sitting in a "Chemo Chair." Every other Thursday Kent will be one of many people that sit and receive Chemo.
Today we arrived at the Cancer center and we talked to a social worker. We were talking to her about renewing a grant that would help us offset some of the medical expenses and she informed us we missed the renewal by one day, major bummer! We have a little wiggle room so we will wait to see if anything new comes up and plan that out when the time arises.
Kent then went and had his labs drawn. Every week Kent usually has a certain lab tech that he prefers and she has not been there the last few times. Many of you know that Kent has a unique sense of humor and that lab tech always seemed to "get" Kent.:) We then, get a call into the "Chemo Pod." Kent takes his spot and then quietly waited to learn about the drill this time around. Kent will be on the same Chemo that he was on before. It is called, Folfiri, this name is an acronym for many "drugs" that are administered to him. The Doctor has also added in one new bio agent- Zaltrap. Kent was "hooked up" and within the 1st Hour and a half I could tell that the chemo was taking a toll on his body. He was very tired and became very quiet. I somewhat recall this from the 1st Chemo of round 1 and 2. His body needs to figure out the gruel of the harsh reality of what Chemo does.
On Chemo days Kent and I often sit alone and often talk, or watch videos, or see who we can give a smile to in our "pod" area. Today, we had two visitors one was an old co worker of Kent and the other a new friend from Sunrise. Today, we were encouraged by their love and support. At times, we can get down just from the reality of this terrible disease and it was so nice to be encouraged. We would like to thank both of them for coming out and visiting with us.
One of the last treatments of the last rounds Kent had, Kent met a gentleman that was on a cancer journey himself. They started talking together and built a friendship. Kent asked me today, "I wonder what happen to him." I said, " I have know idea, but maybe we will see him again." as Kent was walking down the isle we saw him and later Kent was able to talk to him. We are very thankful for friendships and others to walk this journey with us.
Speaking of others to journeying with us.... A couple of weeks ago, Kent and My dad received a email from one of their doctors that they were running in the 25 K River Bank Run and they had a goal in mind. Their goal was to finish the race. Not in any record speed but to finish. Along the way he listened to worship songs that my mom (representing my dad) and Kent had given him to listen to as he raced in Honor of them. What many of you need to know is that this Doctor is a true man of God . He as a doctor takes care of Kent and my Dad's medical needs but also is invested in helping them spiritually, and emotionally. He is one of a kind and I myself am fortunate to call him my Doctor as well. We were honored. Many of you know that last year my aunt ran a marathon in honor of Kent and prayed for him as well. We are so honored and thankful that these individuals have invested their quiet time either with music or without, praying for both Kent and my dad. It is a blessing to have such a support system. We say a HUGE THANK YOU!
As I Finish this post I would like to say, How blessed not only the three of us have been but the entire Breen family has been. Many of you have walked along side of us, prayed for us, done practical every day tasks for us, and we can not say enough how much we Love you and are grateful for you! I am overwhelmed with all the care, love and prayers. Leah,
Wednesday, May 8, 2013
362 days
It was May 11 almost a year ago when I first heard the words "you have cancer" Although not in exactly the same place or the same manner, 362 days later (Wednesday May 8 2013) I heard those words again. Yes you are reading correctly.
Last wednesday I went in for a PET-CT scan to see how things were going since surgery. Today I met with my Oncologist to get a report of the scan. He wasn't in the room for more than a handful of seconds before he told us that I had a reoccurance of cancer. There are 4 spots in the liver. Two reside on the left side and two on the right and those range in size from 8 mm to 15 mm. I also have a spot outside the liver. They think this is a Lymph Node which has grown to the size of 4 cm or 1.5 inches. Lymph nodes normally are not visible with the naked eye from what one of my surgeons told me. The fact that this is 1.5 inches now and was not visible 2 and a half months ago during surgery tells you how quickly this has grown.
Treatment for now will be the same chemo I was getting before, only with a new drug added in. My oncologist talked about other possible treatment plans in the future and didn't outrule surgery. He wants to get started asap with chemo to keep this under control and keep it from spreading to yet another organ. His plan is for me to start my first chemo cycle a week from tomorrow with another in two weeks. I of course get a pump to wear home for 2 days and then get the weekend to recover as best as possible. Let's be honest I was really tired of chemo the last time I had it and thought The surgery would be the last "event" for a while.
I had a lot of information thrown at me today and 7 hours later I'm still trying to process it all. I'm tired and hope I can rest for at least a short time tonight.
--Kent
Last wednesday I went in for a PET-CT scan to see how things were going since surgery. Today I met with my Oncologist to get a report of the scan. He wasn't in the room for more than a handful of seconds before he told us that I had a reoccurance of cancer. There are 4 spots in the liver. Two reside on the left side and two on the right and those range in size from 8 mm to 15 mm. I also have a spot outside the liver. They think this is a Lymph Node which has grown to the size of 4 cm or 1.5 inches. Lymph nodes normally are not visible with the naked eye from what one of my surgeons told me. The fact that this is 1.5 inches now and was not visible 2 and a half months ago during surgery tells you how quickly this has grown.
Treatment for now will be the same chemo I was getting before, only with a new drug added in. My oncologist talked about other possible treatment plans in the future and didn't outrule surgery. He wants to get started asap with chemo to keep this under control and keep it from spreading to yet another organ. His plan is for me to start my first chemo cycle a week from tomorrow with another in two weeks. I of course get a pump to wear home for 2 days and then get the weekend to recover as best as possible. Let's be honest I was really tired of chemo the last time I had it and thought The surgery would be the last "event" for a while.
I had a lot of information thrown at me today and 7 hours later I'm still trying to process it all. I'm tired and hope I can rest for at least a short time tonight.
--Kent
Sunday, May 5, 2013
"Keep it Clean"
This past Wednesday I went in for apossibly my last PET-CT scan. If the scan comes back clean the oncologist will not be able to justify needing another PET-CT scan. This Wednesday I meet with my oncologist to go over the results of the scan. I am eager to see what the scan shows. Obviously I am praying for a clean scan. This would bring on the routine of a visit every three months accompanied by a CT scan each of those for a while until we back off on the scans.
Honestly I am a bit reserved about the scan results. PET shows the activity of cells and organs. Unfortunately this also includes scar tissue. Since I had a surgery recently any scar tissue will show up as being active. This can be translated as possibly being cancer. I'm sure my oncologist will say this is is inflammation and is normal post surgical behavior.
I don't see my Liver surgeon until the end of July. I expect any "active" inflammation will be showing up by that point. However I won't like won't have another scan until August. My Liver surgeon will likely want to take a closer look with at least an MRI or possibly even an biopsy.
Obviously a lot of this is in the future but worry tends to creep in my mind when I don't know what the answers will be. Prayers for a clean scan are all I ask for.
-- Kent
p.s. Leep checking care pages for updates on Leah's dad. http://www.carepages.com/carepages/DaveBreenCarePage
Honestly I am a bit reserved about the scan results. PET shows the activity of cells and organs. Unfortunately this also includes scar tissue. Since I had a surgery recently any scar tissue will show up as being active. This can be translated as possibly being cancer. I'm sure my oncologist will say this is is inflammation and is normal post surgical behavior.
I don't see my Liver surgeon until the end of July. I expect any "active" inflammation will be showing up by that point. However I won't like won't have another scan until August. My Liver surgeon will likely want to take a closer look with at least an MRI or possibly even an biopsy.
Obviously a lot of this is in the future but worry tends to creep in my mind when I don't know what the answers will be. Prayers for a clean scan are all I ask for.
-- Kent
p.s. Leep checking care pages for updates on Leah's dad. http://www.carepages.com/carepages/DaveBreenCarePage
Wednesday, April 24, 2013
"Hello Again! "
It has been a long time since we have connected so, I say to you all "Hello Again."
It has been 7 weeks since Kent has had his 2nd surgery. The colon rresection went very well and he is doing great! Praise God! Kent has been back at work for 2 weeks now and things are going very smoothly for him. He seems to enjoy being back though he misses watching every episode of "Star Wars." and "Lord of the Rings." I however am not missing him watching those :)
Just as we seemed to be back into the swing of things my Dad's battle with cancer seemed to decline. ( see care pages and DaveBreenCarePage for the details on his cancer journey) which is why we are now just saying "Hello Again." to all of you. This month has been a lot of ups and downs and information that we are selves are trying to grasp.
My Dad has been battling cancer for 8 years now. He up to date has been doing very well. He had very few medical interruptions. This past December that changed and we have been on a roller coaster ever since. I don't want to get any of the medical information wrong in transcribing it to you so if you care to, you may create a care page acct. and follow his journey and pray along with us for a miracle. Thank You on behalf of the Breen family for all of those who are all ready praying!
This spring has been very cold and I can't wait to say "Hello Again." to the more spring like temperatures, spring flowers and family time outside! Kent on the other hand is still praying for snow. Maybe that is why it is still cold. :)
Lydia continues to make us very proud as parents. She has excelled in school and stays very busy with tutoring and gymnastics and we as a family attending Gilda's Club a support for those with and who are affected with cancer. She comes out of Gilda's and amazes us with her shared thoughts of those who go through cancer. A couple of weeks ago she told us of a boy in her "group" that had cancer. Her knowledge at age 8 is remarkable. We are proud!
I pray that you Cherish each family moment that God has granted. Tell those around you something that is special about them, Praise God in whatever you do, and help those around you.!
Until we say "Hello Again." LEAH
It has been 7 weeks since Kent has had his 2nd surgery. The colon rresection went very well and he is doing great! Praise God! Kent has been back at work for 2 weeks now and things are going very smoothly for him. He seems to enjoy being back though he misses watching every episode of "Star Wars." and "Lord of the Rings." I however am not missing him watching those :)
Just as we seemed to be back into the swing of things my Dad's battle with cancer seemed to decline. ( see care pages and DaveBreenCarePage for the details on his cancer journey) which is why we are now just saying "Hello Again." to all of you. This month has been a lot of ups and downs and information that we are selves are trying to grasp.
My Dad has been battling cancer for 8 years now. He up to date has been doing very well. He had very few medical interruptions. This past December that changed and we have been on a roller coaster ever since. I don't want to get any of the medical information wrong in transcribing it to you so if you care to, you may create a care page acct. and follow his journey and pray along with us for a miracle. Thank You on behalf of the Breen family for all of those who are all ready praying!
This spring has been very cold and I can't wait to say "Hello Again." to the more spring like temperatures, spring flowers and family time outside! Kent on the other hand is still praying for snow. Maybe that is why it is still cold. :)
Lydia continues to make us very proud as parents. She has excelled in school and stays very busy with tutoring and gymnastics and we as a family attending Gilda's Club a support for those with and who are affected with cancer. She comes out of Gilda's and amazes us with her shared thoughts of those who go through cancer. A couple of weeks ago she told us of a boy in her "group" that had cancer. Her knowledge at age 8 is remarkable. We are proud!
I pray that you Cherish each family moment that God has granted. Tell those around you something that is special about them, Praise God in whatever you do, and help those around you.!
Until we say "Hello Again." LEAH
Tuesday, March 26, 2013
Cautiously Optimistic
I had quite the week with three doc appointments to go over my "future" treatment schedule. Last Wednesday I met with my Liver surgeon. He looked at the incision and said it looked good. There is one part still "healing" but he wasn't concerned about that. After his questions about weight gain and activity level he Asked if I had scans scheduled or had other Doc appointments. We told him about the Oncologist appointment the following day. He told us he wanted to see the following scan and see what that showed in it and meet with me in three months. My next meeting with him is end of July.
On Thursday I met with My Oncologist. He decided not to proceed with more chemo at this point. Studies show 12 treatments are effective but more are not usually any more effective than the first 12. I had 11 treatments which he said was close enough to 12 to suit him. He said the next step is to get a "clean" scan. His question was to whether to do this by CT Scan or PET-CT. He opted for the latter but pushed the scan back until late April in order to get an effective scan without showing "false positive" hot spots. He asked for the middle of May then scheduling made my doc apt with him May 8. My scan will therefore be sometime the week prior to that. I fear this may show a few hot spots on the liver which will concern my Liver surgeon but will likely be scar tissue.
Today I met with my Colo-Rectal surgeon. He said base on every one else's notes I am doing well. He wanted to see my "small" incision just like the other doctors did. He thought it looked good and thought my belly felt good. The pathology report came back with 1 out of 37 lymph nodes showing positive. I asked him if it was taken out. He said yes and during the conversation he got another book and showed us where and what the "nodes" look like. He claimed they were to small to see but the section he takes with a Colon Resection there are a bunch. He managed to "catch" 37 in my surgery. Pathology only found one of those that was positive. That means either only one was infected or the Chemo treatments worked that well that all the cancer was gone from the others. In most surgeries like mine he claimed they typically see 20 - 30 nodes as positive. He said with as well as I am doing my focus should be on gaining my weight back and eating healthy. Over all he said he would be watching my scans as they happen but until I feel like I need help from him, he doesn't need to see me any more.
My Doc today confirmed along with all the others, they are cautiously optimistic. Most people with Stage 4 cancer they would not say cautiously optimistic.
So back to "normal" life until my scan in May. And hopefully I can hear the words "cancer free".
--Kent
On Thursday I met with My Oncologist. He decided not to proceed with more chemo at this point. Studies show 12 treatments are effective but more are not usually any more effective than the first 12. I had 11 treatments which he said was close enough to 12 to suit him. He said the next step is to get a "clean" scan. His question was to whether to do this by CT Scan or PET-CT. He opted for the latter but pushed the scan back until late April in order to get an effective scan without showing "false positive" hot spots. He asked for the middle of May then scheduling made my doc apt with him May 8. My scan will therefore be sometime the week prior to that. I fear this may show a few hot spots on the liver which will concern my Liver surgeon but will likely be scar tissue.
Today I met with my Colo-Rectal surgeon. He said base on every one else's notes I am doing well. He wanted to see my "small" incision just like the other doctors did. He thought it looked good and thought my belly felt good. The pathology report came back with 1 out of 37 lymph nodes showing positive. I asked him if it was taken out. He said yes and during the conversation he got another book and showed us where and what the "nodes" look like. He claimed they were to small to see but the section he takes with a Colon Resection there are a bunch. He managed to "catch" 37 in my surgery. Pathology only found one of those that was positive. That means either only one was infected or the Chemo treatments worked that well that all the cancer was gone from the others. In most surgeries like mine he claimed they typically see 20 - 30 nodes as positive. He said with as well as I am doing my focus should be on gaining my weight back and eating healthy. Over all he said he would be watching my scans as they happen but until I feel like I need help from him, he doesn't need to see me any more.
My Doc today confirmed along with all the others, they are cautiously optimistic. Most people with Stage 4 cancer they would not say cautiously optimistic.
So back to "normal" life until my scan in May. And hopefully I can hear the words "cancer free".
--Kent
Monday, March 18, 2013
Ha Ha Ha!!!
They say Laughter is the best Medicine. Since we are members of Gilda's Club of Grand Rapids we decided to support Gilda's through LaughFest. This past Saturday night we went to see Justin Willman at the Knickerboker Theater in Holland MI. For those of you who don't know who Justin is He is the host of Cupcake Wars. That is one show we watch as a family and Lydia loves to see. She was excited to be able to see and thought she would be able to meet and talk with Justin. Of course being realistic we told her we would likely not be able to see Justin up close other than him being on stage.
The event was set up with general admission so when we arrived we selected the second row for our seat. The show was entertaining and a lot of fun. During Justin's costume change he showed some video's of his work. The last video shown is embedded above, for the full you tube video with more of his work click here.
After this video was finished Justin came out with a balloon like the one in the previous video. Justin came down from the stage and walked past while picking Lydia from the crowd to help him out. They both walked up and sat on the edge of the stage while Justin proceeded to rip the balloon string into pieces and "trying" to hand them to Lydia. You need to watch this next video to see what happened. Lydia was grinning from ear to ear just from getting to spend some time with Justin. And well she got a little token to keep from the trick.
After the show was finished Justin said he was going to be available in the lobby to sign posters and to take photos and talk with people. You can imagine Lydia's excitement when she found out she could "talk" with Justin. She had seen him so many times on TV. We waited for what seemed to be like hours to meet him. Lydia bought a poster so he could sign it. Of course we needed to have a photo of the two "stars" together. Lydia was on cloud 9 when we left for the night. Justin Willman was "seriously funny".
That was the most laughter I had in quite some time. So if Laughter is the best medicine then I must be "Cured" right? Well we will surely find out what the Doctor's have to say. We meet with one of my surgeons and my oncologist this week. Early next week I meet with my other surgeon. By next week I should know what my future treatment plan should look like.
I secretly hope I get put on the wait and watch schedule.
--Kent
The event was set up with general admission so when we arrived we selected the second row for our seat. The show was entertaining and a lot of fun. During Justin's costume change he showed some video's of his work. The last video shown is embedded above, for the full you tube video with more of his work click here.
After this video was finished Justin came out with a balloon like the one in the previous video. Justin came down from the stage and walked past while picking Lydia from the crowd to help him out. They both walked up and sat on the edge of the stage while Justin proceeded to rip the balloon string into pieces and "trying" to hand them to Lydia. You need to watch this next video to see what happened. Lydia was grinning from ear to ear just from getting to spend some time with Justin. And well she got a little token to keep from the trick.
After the show was finished Justin said he was going to be available in the lobby to sign posters and to take photos and talk with people. You can imagine Lydia's excitement when she found out she could "talk" with Justin. She had seen him so many times on TV. We waited for what seemed to be like hours to meet him. Lydia bought a poster so he could sign it. Of course we needed to have a photo of the two "stars" together. Lydia was on cloud 9 when we left for the night. Justin Willman was "seriously funny".
That was the most laughter I had in quite some time. So if Laughter is the best medicine then I must be "Cured" right? Well we will surely find out what the Doctor's have to say. We meet with one of my surgeons and my oncologist this week. Early next week I meet with my other surgeon. By next week I should know what my future treatment plan should look like.
I secretly hope I get put on the wait and watch schedule.
--Kent
Sunday, March 10, 2013
12,13,14 ....
This coming Tuesday will be two weeks since I have been discharged from the hospital. It is hard for me to believe this has been only two weeks. I feel like it has been so much longer for me. Today (day 12) was my second trip to church in the two weeks.
This past week Leah and I went on a few walks. A couple of the later ones were 3 miles. Not bad considering I haven't done much in the line of exercise since last May. My goal is to get back to the point to where I can ride the 36 mile route on the Holland Hundred. It may not happen this summer but I'm looking forward to getting to that point by the summer after next.
Day 14 is Tuesday and the one benchmark I have been waiting for is the ability to Drive. The last time I drove was Wednesday February 20th. I like driving so I am kind of excited to get back behind the wheel again. Leah is ecstatic for me to start driving again. Imagine that!!
After Tuesday I have two benchmarks left to get to. The first of those is to return to a regular diet. Since Sunday after surgery in the hospital I have been on a soft foods diet. A soft food is defined by anything you can cut with a fork only. Meats are chicken or ground Beef. Almost no veggies or fruits due to either seeds or skins. Seeds in fruits also knock out many other things (yogurt is one example). Definite no no's are chips, Nuts and anything difficult to digest. I was given a list when I was discharged and told to use it as a guideline. Believe me I cheated a little but only in moderation and then if something is questionable I chew it so long it may as well have been in the blender.
The last benchmark is to return to work. I am barred from returning to work until I get a written notice from my surgeon. His staff put April 22 on the form however I feel as if I will be able to return earlier than that. Last surgery I returned after 4 weeks which was probably a week or two to early. I meet with my surgeons the week after next and so I can discuss this with each of them at my appointments.
I have appointments with my Liver surgeon and Oncologist two days in a row. I will then find out what the decision on my future treatment schedule. My Oncologist has talked about 4 treatments of Chemo to "take care" of any left over cancer cells left behind. He also has mentioned since my tumor in my colon had not been growing nor shrinking due to treatment he thought maybe to not continue any treatment at this time until necessary. After hearing his final decision I will be inquisitive to find out what the next 6 months, year, and so on are going to look like. It is possible he tosses me right into my first treatment after our meeting. In this case I'm not going to feel like going to my next appointment. I meet with my Colo-rectal surgeon the following Tuesday.
I hope they will wave off the chemo for this point and put it back on the books after we see concrete evidence to do so. I assume I will be on a 3 month "watch" schedule from that point forward for a while. I'll have Pet-ct scans and Colonoscopy's thrown in the pipe for a while.
Here's to the near and distant future.
--Kent
This past week Leah and I went on a few walks. A couple of the later ones were 3 miles. Not bad considering I haven't done much in the line of exercise since last May. My goal is to get back to the point to where I can ride the 36 mile route on the Holland Hundred. It may not happen this summer but I'm looking forward to getting to that point by the summer after next.
Day 14 is Tuesday and the one benchmark I have been waiting for is the ability to Drive. The last time I drove was Wednesday February 20th. I like driving so I am kind of excited to get back behind the wheel again. Leah is ecstatic for me to start driving again. Imagine that!!
After Tuesday I have two benchmarks left to get to. The first of those is to return to a regular diet. Since Sunday after surgery in the hospital I have been on a soft foods diet. A soft food is defined by anything you can cut with a fork only. Meats are chicken or ground Beef. Almost no veggies or fruits due to either seeds or skins. Seeds in fruits also knock out many other things (yogurt is one example). Definite no no's are chips, Nuts and anything difficult to digest. I was given a list when I was discharged and told to use it as a guideline. Believe me I cheated a little but only in moderation and then if something is questionable I chew it so long it may as well have been in the blender.
The last benchmark is to return to work. I am barred from returning to work until I get a written notice from my surgeon. His staff put April 22 on the form however I feel as if I will be able to return earlier than that. Last surgery I returned after 4 weeks which was probably a week or two to early. I meet with my surgeons the week after next and so I can discuss this with each of them at my appointments.
I have appointments with my Liver surgeon and Oncologist two days in a row. I will then find out what the decision on my future treatment schedule. My Oncologist has talked about 4 treatments of Chemo to "take care" of any left over cancer cells left behind. He also has mentioned since my tumor in my colon had not been growing nor shrinking due to treatment he thought maybe to not continue any treatment at this time until necessary. After hearing his final decision I will be inquisitive to find out what the next 6 months, year, and so on are going to look like. It is possible he tosses me right into my first treatment after our meeting. In this case I'm not going to feel like going to my next appointment. I meet with my Colo-rectal surgeon the following Tuesday.
I hope they will wave off the chemo for this point and put it back on the books after we see concrete evidence to do so. I assume I will be on a 3 month "watch" schedule from that point forward for a while. I'll have Pet-ct scans and Colonoscopy's thrown in the pipe for a while.
Here's to the near and distant future.
--Kent
Tuesday, February 26, 2013
WERE HOME!
Wow! What a day Kent has had!.
Despite a nite filled with little sleep and a roomie he is adjusting well to home. He came home at about 3:30 pm . Kent walked from his 7 th floor home to the front lobby and was tired when he got there. We then waited for Kent's mom to take us home. He rode home and held the seat belt not to touch his almost 2 ft. incision. He is resting comfortably in his recliner and we are having a small meal of soft foods. (the diet he is on for 4 weeks). He will get a very good night sleep tonight and I am excited not to run back and forth to the hospital. Kent's body and emotions are very weak but he truly amazes me on how "strong" he is.
We will be resting very comfortable without Nurses and Dr's. coming in but I will tell you when you are in the Hospital as much as our family has been in you know them all by name and you know their story. Many nurses would share their story. Give us a hug or special treatment. I have always been taught that you do onto others as they would do onto you.. Kent and I embraced that as we stayed up there. Each of them took such good care of Kent and each had a smile as they did it. We can't say enough Thanks to all of them for their kindness and love.
As he recovers we would love to see you. We are blessed by all of you. Thankful we are to all of you for your prayers love and encouragement. Many thanks to you all.!
Despite a nite filled with little sleep and a roomie he is adjusting well to home. He came home at about 3:30 pm . Kent walked from his 7 th floor home to the front lobby and was tired when he got there. We then waited for Kent's mom to take us home. He rode home and held the seat belt not to touch his almost 2 ft. incision. He is resting comfortably in his recliner and we are having a small meal of soft foods. (the diet he is on for 4 weeks). He will get a very good night sleep tonight and I am excited not to run back and forth to the hospital. Kent's body and emotions are very weak but he truly amazes me on how "strong" he is.
We will be resting very comfortable without Nurses and Dr's. coming in but I will tell you when you are in the Hospital as much as our family has been in you know them all by name and you know their story. Many nurses would share their story. Give us a hug or special treatment. I have always been taught that you do onto others as they would do onto you.. Kent and I embraced that as we stayed up there. Each of them took such good care of Kent and each had a smile as they did it. We can't say enough Thanks to all of them for their kindness and love.
As he recovers we would love to see you. We are blessed by all of you. Thankful we are to all of you for your prayers love and encouragement. Many thanks to you all.!
late nights and early mornings.
Today is Tuesday currently the time is 7:30 a.m. I am still "hanging" out in the hospital 5 days after surgery. I am disconnected from IV's and Epidural and doing o.k. on oral Pain meds. I am still waiting for the "movement" everyone talks about on this floor. Once that happens I'll be running for the doors. Per the late night I decided to watch a show of mine a little later last night. I turned in around 11:00 sometime expecting a promised full night of rest. Unfortunately my nurses were not any better at predicting the future than I am. promptly at midnight another nurse barged in turned on the lights and staged the other half of my room and kept looking at it light she was going to win an award for her arrangement. She told me the floor was full and I was getting a roommate. After about 20 minutes of "staging" she left. at 1:00 the Admission arrived. By the time he and His wife settled in and all their information was gathered it was likely close to 2:00 a.m.
After getting back to sleep again, his Lab draw bounded in the room and turned on all the lights at 3:00 am.
I was lucky I guess because the next time I saw anybody was 6:00 am for another Blood draw for him. Nothing for me today. "Yay". Needless to say I am wide awake but very tired today after not sleeping a whole lot.
Last night when my nurse was in at 9:00 p.m. she said if I was awake in the middle of the night I should go for a walk. I don't think I have ever done this before in my life but last night I ended up taking two walks in the middle of the night. My nurse must have been on break both times since she said she didn't see me either time.
I would really appreciate prayers that I have a considerable movement today to send me home with confidence of everything working properly.
--Kent
After getting back to sleep again, his Lab draw bounded in the room and turned on all the lights at 3:00 am.
I was lucky I guess because the next time I saw anybody was 6:00 am for another Blood draw for him. Nothing for me today. "Yay". Needless to say I am wide awake but very tired today after not sleeping a whole lot.
Last night when my nurse was in at 9:00 p.m. she said if I was awake in the middle of the night I should go for a walk. I don't think I have ever done this before in my life but last night I ended up taking two walks in the middle of the night. My nurse must have been on break both times since she said she didn't see me either time.
I would really appreciate prayers that I have a considerable movement today to send me home with confidence of everything working properly.
--Kent
Saturday, February 23, 2013
2 for 1 special
Nurse Leah Reporting for Duty.....
It is Saturday! Friday is behind us. We are very happy to report Kent is doing very well. This morning he is awake and for the most part controlling pain well. At the moment he has an epidural for pain, a Tylenol drip,and fluids. He has been rating pain at a 5 this morning.
Kent has basically had two surgeries in one yesterday... The liver surgeon did do an ultrasound of the liver and found one spot and he used the word "microwaved" it, he also found the original liver resection site showed some scar tissue but had little to no concern at this point. The colon surgeon then came along side and did his part , he removed about a foot of colon not all tumor. The size of the tumor was 5 cm circumference by 2 in long. The surgeon said that lymph nodes and surrounding colon looked great. Kent has a HUGE incision. Kent was able to not have to have a colostomy bag( a huge answer to prayer!)
Kent has been told that he may be on clear liquids, and that gravity will help move things along. So walking was important. Two general surgeons came in this morning looked at the incision and said it was looking great. They also asked Kent how he was doing and his overall response was good.
I did stay the night last night but not in Kent's room. :( We had a 2 for 1 special ) Kent had a male room mate and so I was offered an alternative option. Our very dear friend has called the 7 floor "home" off and on for roughly 60 days now due to some complications with her battle with cancer. She graciously offered her couch as a resting spot for my tired eyes. I was so grateful to her and pray so much for her return to health. We are also 2nd on the list for a private rm. Here's hoping.
This morning Kent and I are sitting watching TV together and talking about the last days events. He is a little fuzzy on some things and likes the reassurance of what in fact was done to him. Kent gets very tired often and for the most part doesn't have a problem sleeping. Last night they did give him some benadryl so that he could stay asleep longer periods of time.
I want you all to know I am soooo proud of him. In the last year he went from hating Doctors to embracing each word of advice they have to say concerning his cancer. He really has been a trooper. In this whole journey I have seen him grow in knowledge and understanding for both those who struggle with cancer and those who are helping those with cancer. We have always been there for each other in a health situation and I will stand by him encouraging him, for after all he has done the same for me.
Thank you to ALL YOU Prayer warriors! We couldn't do it without you. Lastly thank you to our Awesome God for healing and restoring strength to Kent!
It is Saturday! Friday is behind us. We are very happy to report Kent is doing very well. This morning he is awake and for the most part controlling pain well. At the moment he has an epidural for pain, a Tylenol drip,and fluids. He has been rating pain at a 5 this morning.
Kent has basically had two surgeries in one yesterday... The liver surgeon did do an ultrasound of the liver and found one spot and he used the word "microwaved" it, he also found the original liver resection site showed some scar tissue but had little to no concern at this point. The colon surgeon then came along side and did his part , he removed about a foot of colon not all tumor. The size of the tumor was 5 cm circumference by 2 in long. The surgeon said that lymph nodes and surrounding colon looked great. Kent has a HUGE incision. Kent was able to not have to have a colostomy bag( a huge answer to prayer!)Kent has been told that he may be on clear liquids, and that gravity will help move things along. So walking was important. Two general surgeons came in this morning looked at the incision and said it was looking great. They also asked Kent how he was doing and his overall response was good.
I did stay the night last night but not in Kent's room. :( We had a 2 for 1 special ) Kent had a male room mate and so I was offered an alternative option. Our very dear friend has called the 7 floor "home" off and on for roughly 60 days now due to some complications with her battle with cancer. She graciously offered her couch as a resting spot for my tired eyes. I was so grateful to her and pray so much for her return to health. We are also 2nd on the list for a private rm. Here's hoping.
This morning Kent and I are sitting watching TV together and talking about the last days events. He is a little fuzzy on some things and likes the reassurance of what in fact was done to him. Kent gets very tired often and for the most part doesn't have a problem sleeping. Last night they did give him some benadryl so that he could stay asleep longer periods of time.
I want you all to know I am soooo proud of him. In the last year he went from hating Doctors to embracing each word of advice they have to say concerning his cancer. He really has been a trooper. In this whole journey I have seen him grow in knowledge and understanding for both those who struggle with cancer and those who are helping those with cancer. We have always been there for each other in a health situation and I will stand by him encouraging him, for after all he has done the same for me.
Thank you to ALL YOU Prayer warriors! We couldn't do it without you. Lastly thank you to our Awesome God for healing and restoring strength to Kent!
Monday, February 18, 2013
BIG WEEK!
FRIDAY!
Most people look forward to Friday. This week the De Young family would just like to get Friday the 22nd over with. It isn't that we want to skip it. We want the cancer gone and hopefully Kent to live cancer free but this week Friday is the big surgery. We are confident in our Heavenly Father, Confident in the Surgeons whom we believe to be christian, and confident in the power of prayer that we will be carried through this.
Kent and I are very anxious about this surgery. Kent for obvious reasons and I just because I have walked this road with my Dad and now again with Kent. The 2 most important men in my life fighting so hard to be cancer-free. I sometimes wish that I could take the pain for them. My heart aches when they are not well.
Many of you have asked me what is happening in this surgery and I will try to brief and not give to much TMI. Kent will have 2 surgeons in his surgery. The first will be the liver surgeon. He will do a ultra sound right on the liver itself. He will then determine if the liver has "hot spots" on it and then do an ablation or "cutting away" of the tumor that remains in the liver. Then he will pass the "torch" to the Colon Surgeon. The colon surgeon will do a colon resection. ie... Take out the tumor and then reconnect the two good parts of the colon. We are hoping that he will not have to have a colostomy bag, but we will take each obstacle one step at a time .
We don't get to say it often but we would like to take a moment to thank so many of you. Each in your own way you all have stepped along side of us , journeyed with us and loved us through good times and bad. You all have made a difference in our life and we can't say enough what that means to us.
I would like to ask if I could for prayers for Kent and my Dad. Both on a cancer journey, both needing love, strength and hope for a cure. Both at times weak and no hope and other times feeling so much hope from all of you our friends and family. Kent and Dad, your family loves you so much and want in whatever way to stand right next to you. LOVE you both! Leah
Most people look forward to Friday. This week the De Young family would just like to get Friday the 22nd over with. It isn't that we want to skip it. We want the cancer gone and hopefully Kent to live cancer free but this week Friday is the big surgery. We are confident in our Heavenly Father, Confident in the Surgeons whom we believe to be christian, and confident in the power of prayer that we will be carried through this.
Kent and I are very anxious about this surgery. Kent for obvious reasons and I just because I have walked this road with my Dad and now again with Kent. The 2 most important men in my life fighting so hard to be cancer-free. I sometimes wish that I could take the pain for them. My heart aches when they are not well.
Many of you have asked me what is happening in this surgery and I will try to brief and not give to much TMI. Kent will have 2 surgeons in his surgery. The first will be the liver surgeon. He will do a ultra sound right on the liver itself. He will then determine if the liver has "hot spots" on it and then do an ablation or "cutting away" of the tumor that remains in the liver. Then he will pass the "torch" to the Colon Surgeon. The colon surgeon will do a colon resection. ie... Take out the tumor and then reconnect the two good parts of the colon. We are hoping that he will not have to have a colostomy bag, but we will take each obstacle one step at a time .
We don't get to say it often but we would like to take a moment to thank so many of you. Each in your own way you all have stepped along side of us , journeyed with us and loved us through good times and bad. You all have made a difference in our life and we can't say enough what that means to us.
I would like to ask if I could for prayers for Kent and my Dad. Both on a cancer journey, both needing love, strength and hope for a cure. Both at times weak and no hope and other times feeling so much hope from all of you our friends and family. Kent and Dad, your family loves you so much and want in whatever way to stand right next to you. LOVE you both! Leah
Wednesday, February 6, 2013
Between now and then
When I refer to this title there are a lot of this and that will happen between now and Feb 22 (or then.)
Today and every Monday and Wednesday Lydia goes to Sylvan Learning, to give her a little academic boost. Today is no different except we will go and have a monthly conference with her teacher(my cousin) The last time we heard how well she was doing with my cousin, we were so excited because between the last conference and this one Lydia has excelled so much. When she started Sylvan she was a 3rd grader doing work as a 1st grader would do -- to date, she is a 3rd grader doing work as if a 5th grader was doing the work. We couldn't be more proud of her. Her life as an 8 yr. old has been turned upside down when cancer entered in the picture and that accomplishment makes us as parent's so proud. So we are excited to see how well she is doing now.
Even before the Sylvan Conference we are honored to have her Jenison Christian school conference. We will have this early by a week or so due to us having some schedule conflicts when conferences are. I can't wait to hear how she is doing at this point in the school year. Lydia has always been a great girl with a great personality. We are proud of her and can't wait to hear how this Blondie , blue eyed girl is doing.
Then of course we have Valentine's day, and the many things that go along with this holiday. Lydia has already addressed her important cards,( maybe I could get her to do mine as well. All my preschoolers need a little something sweet as well :0) ) Then this week Sunday or the following my mom always makes a Valentine Dinner invites all of us kids , grand kids and my Dad to celebrate. She does this by buying a little something special for each of us and then goes around and tells us why she loves us and how proud of us she is. This year no different than any other I will have my Kleenex's on hand and a hug for her as she is and has shared in the meal her talent, showed us her love and cared for us all as she does so well every day of every year. We love her for it.
Then, we get to Surgery week. The 22nd of February is the big day. Kent is a little nervous. He is scared of the unknown and the care after is a little scary to me as well. The last surgery, they worked on the liver, this surgery, they will focus on a Colon resection and the colon surgeon and the liver surgeon will work together. The Liver surgeon will go first and he will do an ultra sound right on the liver to make sure there are not any more tumors and see about removing by ablation. At this point Kent only has the left lobe of his liver and it has grown to a healthy size to have work on it. Then the Colon Surgeon will come in and work at removing the tumor in the Colon. Kent had a colonoscopy back in May and when they did this they tattooed the tumor, so the Surgeon will know exactly where and then remove. They will hopefully remove with the hope that they will not have to put in a colostomy bag. If you need to know how to pray please pray he doesn't need a colostomy bag. The Surgeons have both told us they work well together and we are very grateful for the medical team we have.
So between now and then here is what you can do! PRAY! PRAY, that the surgeons will have the best possible success in taking all that cancer out! PRAY that Kent will feel peace, PRAY that his nerves will be calm until then. PRAY that the prep before surgery goes well, PRAY that his family as they stand next to him will be the best support they can be. In return we will PRAY for each of you as you walk your own struggles. Lastly My PRAYER is That each person with cancer, that walks in my path will someday be CANCER FREE !
Today and every Monday and Wednesday Lydia goes to Sylvan Learning, to give her a little academic boost. Today is no different except we will go and have a monthly conference with her teacher(my cousin) The last time we heard how well she was doing with my cousin, we were so excited because between the last conference and this one Lydia has excelled so much. When she started Sylvan she was a 3rd grader doing work as a 1st grader would do -- to date, she is a 3rd grader doing work as if a 5th grader was doing the work. We couldn't be more proud of her. Her life as an 8 yr. old has been turned upside down when cancer entered in the picture and that accomplishment makes us as parent's so proud. So we are excited to see how well she is doing now.
Even before the Sylvan Conference we are honored to have her Jenison Christian school conference. We will have this early by a week or so due to us having some schedule conflicts when conferences are. I can't wait to hear how she is doing at this point in the school year. Lydia has always been a great girl with a great personality. We are proud of her and can't wait to hear how this Blondie , blue eyed girl is doing.
Then of course we have Valentine's day, and the many things that go along with this holiday. Lydia has already addressed her important cards,( maybe I could get her to do mine as well. All my preschoolers need a little something sweet as well :0) ) Then this week Sunday or the following my mom always makes a Valentine Dinner invites all of us kids , grand kids and my Dad to celebrate. She does this by buying a little something special for each of us and then goes around and tells us why she loves us and how proud of us she is. This year no different than any other I will have my Kleenex's on hand and a hug for her as she is and has shared in the meal her talent, showed us her love and cared for us all as she does so well every day of every year. We love her for it.
Then, we get to Surgery week. The 22nd of February is the big day. Kent is a little nervous. He is scared of the unknown and the care after is a little scary to me as well. The last surgery, they worked on the liver, this surgery, they will focus on a Colon resection and the colon surgeon and the liver surgeon will work together. The Liver surgeon will go first and he will do an ultra sound right on the liver to make sure there are not any more tumors and see about removing by ablation. At this point Kent only has the left lobe of his liver and it has grown to a healthy size to have work on it. Then the Colon Surgeon will come in and work at removing the tumor in the Colon. Kent had a colonoscopy back in May and when they did this they tattooed the tumor, so the Surgeon will know exactly where and then remove. They will hopefully remove with the hope that they will not have to put in a colostomy bag. If you need to know how to pray please pray he doesn't need a colostomy bag. The Surgeons have both told us they work well together and we are very grateful for the medical team we have.
So between now and then here is what you can do! PRAY! PRAY, that the surgeons will have the best possible success in taking all that cancer out! PRAY that Kent will feel peace, PRAY that his nerves will be calm until then. PRAY that the prep before surgery goes well, PRAY that his family as they stand next to him will be the best support they can be. In return we will PRAY for each of you as you walk your own struggles. Lastly My PRAYER is That each person with cancer, that walks in my path will someday be CANCER FREE !
Thursday, January 31, 2013
MM MM MM
I'll begin with the medical information from this week. I had an MRI Scheduled this Wednesday and dreading it. I hate them due to all the noise and the IVs. I arrived and since we had so many test at Lemmon Holton in the early morning the Receptionist knows us fairly well. She asked what I was there for and when I told her she said at least they were easy. I told her I "hated them". We went through about 3 or 4 vollys of her telling me they weren't bad and me repeating that I hated them. The other receptionist politely interjected that she thought I wouldn't change my answer. Of course she was right! She told me I was having a very nice tech and it would be o.k.
I was pleasantly surprised. I avoided the IV due to asking for port access. Although it wasn't exactly fun at least it was numb and they did a great job accessing my port. Per the noises they were still present but they used ear plugs so they were much better than the previous times I had the test. Overall I wouldn't endorse MRI to anyone unless absolutely necessary but based on my experience this time I would almost consider it.
On to the title part of the post. I arrived home after stopping at the store for a couple of things during one of the least visible snow storms of the current winter. Leah said our neighbor brought over dinner. Pork Chops were in the oven and shortly after I got home our neighbor delivered Cheesy Potatoes and freshly made applesauce. It was a great meal especially after Leah had a couple of days of low energy levels and didn't really feel like preparing a meal. We thank God for those who want to help us during our journey. Especially if it is Random and "just because". It is always greatly appreciated.
Thank you Neighbor for a great supper and leftovers for tomorrow's lunch.
--Kent
I was pleasantly surprised. I avoided the IV due to asking for port access. Although it wasn't exactly fun at least it was numb and they did a great job accessing my port. Per the noises they were still present but they used ear plugs so they were much better than the previous times I had the test. Overall I wouldn't endorse MRI to anyone unless absolutely necessary but based on my experience this time I would almost consider it.
On to the title part of the post. I arrived home after stopping at the store for a couple of things during one of the least visible snow storms of the current winter. Leah said our neighbor brought over dinner. Pork Chops were in the oven and shortly after I got home our neighbor delivered Cheesy Potatoes and freshly made applesauce. It was a great meal especially after Leah had a couple of days of low energy levels and didn't really feel like preparing a meal. We thank God for those who want to help us during our journey. Especially if it is Random and "just because". It is always greatly appreciated.
Thank you Neighbor for a great supper and leftovers for tomorrow's lunch.
--Kent
Wednesday, January 23, 2013
_________ of Steel!
Where do I begin? Last Thursday meeting with my oncologist he suggested and hoped treatment # 5 or 11 (depending on whether you count the first round of 6 or not) would be my last chemo treatment pre surgery. He referred me to both of my surgeons.
Monday I met with my Liver surgeon. He said the pet scan showed 2 spots on the liver (both sites treated in the previous surgery). He wants to take a closer look to make sure nothing has regrown. He ordered an MRI which I will have next Wednesday. During Surgery he will do an ultrasound on the liver itself to take care of any remaining lesions in/on the liver. Following my appointment with him, his office tried to make an appointment with my other surgeon. They also told me to see my Primary care doc to get my pre-op done asap.
Tuesday I had my Pre-op with my PCP. This went well. The last time I had a pre-op the EKG turned out with a little fluke in it. Nothing my Doc was concerned about then so he cleared me then and the Surgeon's office was still concerned so they made me go for a stress test. This time the EKG turned out the same as last time. Fortunately I passed the stress test last time and the results are valid for one year. Yea for not having to repeat that test.
Today I met with my Colo-rectal surgeon. He went over the whole procedure explained the process and told us what to expect during and post surgery. He explained all the risks whether large or small. Then he took the barrage of questions we fired back at him. He answered all questions very well and I look forward to his expertise during surgery. He excused himself and told us his nurse would come in talk through surgery prep and would then have to talk with the nurse at my other surgeons office and schedule a time the two of them could do the surgery. After leaving the room and waiting a few minutes He returned and explained that while he was meeting with us the 2 nurses had talked and already put a date on the schedule. He told me the date and told me his nurse would be in shortly to go over the details.
Moments later she came in and talked over all the particulars of prep, diet the day before, Antibiotics the day before and then again told me we needed to wait 4 weeks minimum from the last chemo treatment. Due to that waiting period and the Doctors schedules I am scheduled for surgery Friday February 22 at 1:00 p.m. They picked that time slot so I would be in the last surgical slot of the day. This way if there were any complications from either surgeon they would have time to complete their work carefully without having to worry about any following bookings for the OR room. I arrive at 11 am for registration and intake.
If you haven't figured the title out by now the underline is suppose to be Nerves. Not that mine will be the strength of steel but mine will be high for the next 4 weeks until we get to the 22 of February.
Prayers for my anxiety and nerves would be greatly appreciated.
Thanks
--Kent
Monday I met with my Liver surgeon. He said the pet scan showed 2 spots on the liver (both sites treated in the previous surgery). He wants to take a closer look to make sure nothing has regrown. He ordered an MRI which I will have next Wednesday. During Surgery he will do an ultrasound on the liver itself to take care of any remaining lesions in/on the liver. Following my appointment with him, his office tried to make an appointment with my other surgeon. They also told me to see my Primary care doc to get my pre-op done asap.
Tuesday I had my Pre-op with my PCP. This went well. The last time I had a pre-op the EKG turned out with a little fluke in it. Nothing my Doc was concerned about then so he cleared me then and the Surgeon's office was still concerned so they made me go for a stress test. This time the EKG turned out the same as last time. Fortunately I passed the stress test last time and the results are valid for one year. Yea for not having to repeat that test.
Today I met with my Colo-rectal surgeon. He went over the whole procedure explained the process and told us what to expect during and post surgery. He explained all the risks whether large or small. Then he took the barrage of questions we fired back at him. He answered all questions very well and I look forward to his expertise during surgery. He excused himself and told us his nurse would come in talk through surgery prep and would then have to talk with the nurse at my other surgeons office and schedule a time the two of them could do the surgery. After leaving the room and waiting a few minutes He returned and explained that while he was meeting with us the 2 nurses had talked and already put a date on the schedule. He told me the date and told me his nurse would be in shortly to go over the details.
Moments later she came in and talked over all the particulars of prep, diet the day before, Antibiotics the day before and then again told me we needed to wait 4 weeks minimum from the last chemo treatment. Due to that waiting period and the Doctors schedules I am scheduled for surgery Friday February 22 at 1:00 p.m. They picked that time slot so I would be in the last surgical slot of the day. This way if there were any complications from either surgeon they would have time to complete their work carefully without having to worry about any following bookings for the OR room. I arrive at 11 am for registration and intake.
If you haven't figured the title out by now the underline is suppose to be Nerves. Not that mine will be the strength of steel but mine will be high for the next 4 weeks until we get to the 22 of February.
Prayers for my anxiety and nerves would be greatly appreciated.
Thanks
--Kent
Thursday, January 17, 2013
POD
This week I saw and talked with the woman I met two weeks ago during my last treatment. She said she did well during the last two weeks. I was glad to hear that. I don't know if or how soon I will see her again. I will explain why in the following paragraph. Both her and my nurse were disappointed with the possibility they may not see me for a while.
Yesterday I had a PET-CT scan and today I met with Doctor to find out the results. What you have to understand in order to really get this is the CT part is to tell what and where and what size it is. Physical perspectives. The PET part shows activity so more active areas "light up" while less or inactive areas are not lit up rather shades of grey. That being said there were two spots that light up. First is the Tumor in the colon. The Doc said chemo is not making the tumor smaller while it is not growing either. He said the Cancer/Tumor is stable. His suggested treatment is to remove it with surgery. This was part of the original plan and expected to happen in February some time. The second spot that lights up is in the liver. While there is activity there, the CT part of the scan showed no lesion or tumor in that location. That location is in the left half of the liver (the only part I have left) specifically where the Surgeon did ablation on surface lesions. The Doc's answer to the activity was due to inflammation likely from the ablation process. The Doctor had me proceed with my 5th chemo treatment today. He indicated this may (and he hopes) be the last treatment before surgery. This all depends on what my surgeons have to say.
Next up will be meetings with both my Colo-Rectal surgeon and my Liver surgeon. At this point my Doc/Oncologist thinks this will be a combined surgery with both surgeons. I have heard from my Colo-Rectal surgeon they work together often and get along well. I have a great team of Medical Professionals and with some hesitation look forward to this surgery. The result of this surgery will likely make me cancer free from then into the near future. Then likely starts the "watch phase".
-- Kent
Subscribe to:
Posts (Atom)